My husband had a clonic tonic seizure a few days ago. It was the first time he has ever had a seizure. It was the most scariest thing I've ever experienced. It happened whilst he was sleeping. I really thought that he was having a major stroke and dying in front of my eyes. My young children were woken up and witnessed a lot of it.
It would be fair to say that I am really struggling. I'm confused as his scans have come back clear and they are finding it difficult to find a cause. He is in his late 30s so it's all come as a shock. I keep reliving those moments, the sounds, the movements and my feelings during that time. He is absolutely shattered and feels guilty, which makes me feel even more crap.
The doctors don't know if it will happen again or not, which means that I spend all my time being fixated with where he is and what he's doing. Wondering if he is safe. I'm not sure how we will cope when he goes back to work.
Please help. How do people live with the unpredictability of when a seizure might happen. How do they maintain their independence and dignity? My husband travels a lot for work and now we don't know how he will be able to go alone. What if he has a seizure when he is in a hotel room alone? Please share your experiences.
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General health
Husband had a seizure
34 replies
Pyracantha1 · 24/11/2019 20:55
OP posts:
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