I had my first rheumatology appointment yesterday. Turns out there was no point in going and I still don't have any answers.
It was a short appointment. She asked me a few questions and then told me to lie down as she checked a few of my joints. All my joints were fine and they didn't hurt when she moved them. After that, she just said that she doesn't think that I have an inflammatory disease, and that she doesn't know how to explain my pain. She compared it to someone having chest pain without having a heart attack? She then went on to say that the pain typical with people with fibro is pain that is "every day and all the time and doesn't tend to come and go".
That's really all she said. Regarding one of the medications that I take, Methocarbamol, she said she "definitely wouldn't have prescribed that" for my jerks and spasms, and that there "isn't much point in prescribing me medications that won't work". After that she seemed in a hurry to get me out after she made me cry by asking me what's happened the past year, and then sort of put everything down to my depression, which made me really angry tbh. After saying that i was sent to A&E with severe burning pain everywhere a few months ago, she looked at the wrong flimming admission records. She said the nurse outside would take my blood and send it away for testing.
I left in tears i was so upset. She made me feel like there was nothing wrong with me, that I wasn't going to receive any treatment, and that my symptoms were all in my head.
I just left after that without getting the blood tests done. I couldn't face going in there in tears knowing that having blood tests done for the millionth time this year will show up nothing. She made me feel like I was crazy or that the symptoms were purely psychological after I told her I have depression, and that the pain flares when I'm stressed.
My GP really thinks I have it and is supportive, but I hate that I might nit receive any because I'm not in pain every single minute of every single day.
Thanks for listening lovelies and I hope you're all having a pain free morning xx
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General health
Rheumatology appointment was a disaster
11 replies
HALashley · 12/10/2017 08:55
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