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To keep or to remove large fibroid? Before getting pregnant..

(9 Posts)
Capricesea Wed 04-Oct-17 13:50:29

Hello ladies, I think I read all the threads here on this subject but looks like most ladies discovered they have fibroid already during pregnancy.

I am 42, went through very painful divorce two years ago, and desperately want to have children while it still not too late. Recently I have met lovely man, still early days but we have already talked about having children in the future..

Apologies for long introduction. The problem is I had pedunculated fibroid (on the outside wall of uterus) since early thirties, it was increasing in size gradually over the years, but I had advice do nothing about it as I didn't experience any discomfort, pain or bleeding.
This year it reached the size 13cm X 8cm X 7cm. There are also few smaller ones.
I had several consultations and most consultants advised surgery, but one lady consulatant at the hospital advised to keep it and go ahead with pregnancy. So I am confused!

Now I have been on the waiting list for laparoscopy myomectomy one of the best surgeon in this field, the surgery is scheduled for next Tuesday at UCLH, yesterday I had pre assessment there.
I am so scared as there can be complications - like adhesions (which can influence fertility), or if bleeding starts they will go with hysterectomy - I have signed the consent form. I still think that even laparoscopy is traumatic procedure which can reduce chances to conceive, especially at this age..

That's why I am thinking maybe its safer to keep it and do nothing about it? especially as I don't have any symptoms, apart from pot belly?
Have anyone had similar experience of keeping large fibroid before pregnancy or removing it?
Which choice shall I make? Clocks are really ticking in my head, only few days left for NHS surgery, if I missed it it will cost £10K with the same surgeon.. But if something goes wrong during surgery it will be not big consolation of saving this money.
Sorry for so long post!

LiefievdM Wed 04-Oct-17 14:09:31

I have a similar sized fibroid (subdural - also outside of uterus). I also saw the specialists at UCHL, who advised against removal before I had finished my family. The main reason was that even though it is on the outside, removal still creates a scar on the uterus and therefore a weak spot fduring pregnancy and birth, similar (but obviously not exactly like, as it doesn't extend through the wall) to a c-section scar.
Also, being outside the uterus, it should not impact the baby at all. It just might/will cause you additional discomfort during the pregnancy. How much really depends on where it is.
I'm surprised the UCHL guys haven't discussed this with you at the initial consultation?

Having had adhesions from a previous c-section, I can tell you that they are no fun during labour! Mine caused considerable pain during contractions.

The best person to advise is the team at UCHL. I'm assuming you are seeing Dr Iskaros?

Capricesea Wed 04-Oct-17 14:43:39

Message withdrawn at poster's request.

StepAwayFromCake Wed 04-Oct-17 17:53:49

Almost exactly the same position as Liefie. My pedunculated fibroid was discovered during my first pregnancy, was a bit smaller than yours at the time of discovery, and grew even bigger. It caused me a lot of pain during pregnancy, but neither I nor the baby were ever in any danger from it. It was monitored and scanned to be certain that it did not obstruct the cervix, and it had absolutely no effect on my labour.

When I had it investigated after dc1, I was strongly advised not to have it removed until my family was complete, due to the risk of complications during the operation potentially leading to an emergency hysterectomy.

It shrank between pregnancies and grew again, but not as much, during my second pregnancy. Apparently it outstripped its blood supply and died. No more pain from it.

No problems with it at all during 3rd pregnancy.

And then peri-menopause caused it to shrink further.

So it's still sitting there inside me, causing no problems to anyone, and I've avoided an operation.

StepAwayFromCake Wed 04-Oct-17 17:54:54

I was at UCLH, too, but I don't remember who my consultant was.

Capricesea Wed 04-Oct-17 18:22:24

StepAway, big thank you for your reply, I am feeling more and more confident in my decision to avoid surgery!

LarkDescending Thu 05-Oct-17 10:47:29

I had strong advice to have my (numerous intramural and subserosal) fibroids removed in order to improve fertility as they were distorting the uterine cavity, as well as causing other symptoms due to their bulk. I had two myomectomies conducted laparoscopically.

10 years on from myomectomy I needed a hysterectomy due to fibroid regrowth. Once again that was successfully completed laparoscopically.

Honestly I would beware of cancelling your surgery on the basis of the experiences of others. Each of our cases is unique, and the advice given to you was based on your particular case. I do understand how scary it is signing the consent forms, but bear in mind that in skilled hands a laparoscopic procedure is very safe - much more routine these days than when I had it - and the chances of needing an emergency hysterectomy are extremely slim.

guilty100 Thu 05-Oct-17 10:50:40

I think the difficulty/ease of removal depends a bit where it is. I would explain the situation to your surgeon and seek proper advice from someone who actually has knowledge and a proper picture of your individual case.

LiefievdM Thu 05-Oct-17 10:51:53

@LarkDescending that is the point of @Capricesea's post though. She has been given conflicting advice by consultants at the same hospital where she is due to have surgery.

As I understand it, the OP's pendunculated fibroid is on the outside of her uterus, so would not interfere at all with the uterine cavity.

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