Hello Everyone,
We have just found out at our 20 weeks scan that our child will be born with Coarctation of the aorta, which is a congenital heart defect.
This came to us as an utter shock as we have no family history etc.
We are concerned with a number of things. The view of an open heart operation straight after birth, and if any other defects can be discovered post birth that are not visible on the scan at present as it is very early in the pregnancy?
What does it mean living with CoA. Does it have an impact on your life and doing sports at school? Is another operation (or few subsequent) always needed? Do children with CoA get ill more as their immune system is not as strong?
Any experience of a parent of a child or an adult that had it 'fixed' here in the UK would be most appreciated. We have been referred to Royal Brompton Hospital for the operation after birth. Thank you so much for all answers. We are worried sick :(
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Coarctation of Aorta - please help :(
4 replies
moomin90 · 27/09/2017 21:10
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