MRI shows inflammation on small bowel

[lloydjam]

HI

My DD has just had an MRI which shows inflammation and thickening of the small intestine. She has suffered from stomach pain for years. She is a coeliac. Chrohns and Ulcerative colitis have been ruled out (to the best of my knowledge). Does anyone have an idea what may be causing this? thank you

[lloydjam]

just putting this out again in case anyone can help ?

[Ilikecrocs]

I have Crohn's disease and that's the kind of results I've had from previous MRI's.
How have they reached the decision that it's not?

[lloydjam]

HI there she has had a negative faecal calprolectin test (?) and doesn't seem to have any blood in her faces - would that be enough to rule it out ? thanks

[Ilikecrocs]

My Crohns is in my small bowel and I've never had blood when I've been to the toilet.
I've had Crohns for 16 years.
I can't really answer about the calprotectin stool sample as I'm not sure what my previous levels have been.
I honestly can not think of what else could cause inflammation in the small bowel.

[lloydjam]

Thank you , hopefully we shall get some answers from the consultant next week.

[Ilikecrocs]

Good Luck

[fireandicecubes]

I'm the same as Ilikecrocs I've never had blood or mucus in my stools & my CRP level has never gone above 10 except during my massive flare 5 years ago when I was finally diagnosed with Crohns (I'd had symptoms for 20 years but all tests had been inconclusive until then). I think the symptoms depend on where the inflammation actually is. My Crohns was mainly in my terminal ileum with small amounts of inflammation higher up my small bowel. I had to have resection surgery due to a fistula 2 years ago & thankfully I've been in remission since.

I can't think of anything but IBD which could cause inflammation in the small bowel. Good luck, hope you get some answers next week

[lloydjam]

Thank you both - my DD has pretty much pain every day and so doesn't seem to get flare ups or remission so it doesn't seem to fit with classic chrohns (to my limited knowledge) . Will be glad to get some answers. !

[Rab25]

Hi I know this is now 3 years ago but wondered how your dd got on. My daughters just out of hospital after being admitted with horrific pain in her stomach. She had similar episode 2 years ago but they removed her appendix (don’t think it was appendicitis at all ) surgeon finally asked for mri scan which showed thickening of ilium and we were told she’d have endoscopy. She’s had really severe stomach pain off and on for years but does go away.
Today been told they won’t do endoscopy unless calprotectin stool sample comes back high as now saying don’t think symptoms of crohns but I think only way we will get answers is with endoscopy. Any opinions

[Lou9817]

@Rab25 hi just wondering how your daughter got in did she end up doing a calprotectin test ?
move had mine back about 3 months ago it was 157 so I’ve jus had to repeat as I’m having awful stomach cramps again

hope Your daughter is okay x