I hope this is in the right place, sorry if it isn't. I have suffered from hemiplegic migraine since DD1 was a baby 15 years ago. It first became an issue when she was three months old and my left arm refused to work when I tried to get her out of her cot one night. During an attack i lose the use of my left arm first and in a bad attack the entire right side of my body is paralysed.
I have been lucky not to suffer too badly and to only have 3 or 4 a year and I get about a twenty minute warning before it takes hold , (I have your bog standard type of migraine the rest of the time) until about a year ago. In the last 12 months I have had a countless number of attacks, most not lasting long but some quite severe. Two months ago I was taken in to hospital with a particularity nasty attack because the left side of my face fell and I could t speak as well as the usual paralysis, I have a massive family history of stroke and they were worried I was having one. Everything was fine, it was the hemiplegic migraine with vertigo, which was a lovely bonus, but it lasted 5 days. Since then I have had 3 attacks which have lasted more than 48 hours at a time and quite frankly I don't have the time for them! Four of my children have special needs and I really can't spare the time to lay in bed unable to do anything. DH dislocated his shoulder 8 weeks ago and he has taken a break from work to help with the children and thankfully will be around until after Christmas (DS4 has epilepsy which is uncontrolled and DS3 had ASD which means we are awake all night some nights) but I need to get this sorted before then.
I have had various preventers for my migraines and am currently on pitozofen and amitriptyline but it doesn't seem to be working. Does anyone have any recommendations or suggestions which may work?
Sorry about the long post
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General health
Anyone else with hemiplegic migraine?
6 replies
MrsSam · 25/10/2016 23:23
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