I've had joint pain on and off for a while now, and in January this year I had some toes swell up massively.
Then ankle, and other toes, elbow and wrists.
Diagnosed with suspected Psoriatic Arthritis about 2 months ago. No psoriasis (yet) and I'm negative for RF but dr still could be RA... it doesn't matter so much at this stage, but he said it matters "a bit" ongoing and that we will have to see how it unfolds. I do have some small nail damage on toes.
At present I've been on methotrexate which hasn't helped (ESR and CRP still going up) and just started Arava in addition.
I also take Naprosan when it's too bad and Panadol daily.
It's been a huge shock going from someone active, doing yoga, running around after 4 kids and I'm only 49, to not bring able to walk for a couple of hours, then limping around all day. My other foot has now joined in so I'm hobbling in synch at least!
My DH is amazing and does everything he can but he still has to work and I find myself at home looking at all the housework trying to find some energy to keep up with it all. I also work part time outside the house.
I go to bed at 7.00 and we can't go out at night - if we do have to its bed all day or rest at least as my feet are so swollen.
I'm really tired of being in so much pain and waiting for something to help - I know the drugs are longer term to work but geez it seems like forever!
Dr told me only 30% of PsA patients respond to methotrexate but they have to try first - public health and cost.
I can't see a future with a normal life at the moment. I'm scared it will always be like this 😞
I've just started Aqua classes and it helps keep my spirits up and I try to be positive ie I'm still alive, and it's not life threatening.
But I feel bitter. And resentful of others who are enjoying normal life. And also quite alone, as not many friends know (I've necessarily withdrawn a little)
Sorry, this has been long!
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General health
Psoriatic Arthritis - any fellow sufferers?
25 replies
gruffalo13 · 28/07/2016 22:58
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