I'm posting for support I guess. I have so many things wrong with me. Yesterday I saw a new doctor and I was trying to explain and just couldn't stop crying. I just don't know how to cope any more or what I should do to try to improve things.
I have endometriosis - reasonably well controlled with long term gnrh drugs but there is scar tissue that could't be removed and nerve damage due to late diagnosis. I could have a hysterectomy but not guaranteed I would be pain free.
I have a bulging disc in my back and some compressed vertebrae. Plus probably some sacroiliac joint problems.
A year ago I fell and tore a lot of tendons in my right hip and leg. Still no where near recovered. Have good physio but he's away at the moment and I am feeling it. This injury impacts on back as well. MRI today to check status.
Severe post-traumatic arthritis in left ankle (so both legs are compromised). Walking is painful. Could have total ankle replacement or fusion but have had 3 surgeries on it (2 in last 4 years) and not ready physically or emotionally. Maybe I should see a rheumatologist?
Also have high blood pressure, depression and anxiety. Can't find an anti-depressant that works because I can't take anything that acts on serotonin. Have sleep meds but still can't sleep.
I have hay fever and possibly other allergies, had an appt with allergist who says my only allergy is grass pollen and it should be better by now (it's not). Also doesn't explain why I have symptoms all year.
This year I've also had eye problems which they think may be related to allergies. Eyes red and blistered inside. The only thing that works is course of antibiotic drops followed by immuno-suppressant drops. These are a nightmare because they burn when I put them in and have to put ice on my eyes after - takes an hour 3 times a day to go through this palaver.
I have had tinnitus for 20+ years, was better when I was on Prozac but had to stop and now it is really bad. New noises have arrives in recent weeks. That's keeping me awake too.
I know I need to lose weight or even try a anti-inflammatory diet but the idea of not being allowed to eat what I want when I am so low and unwell feels like the last straw.
As you can imagine I'm on a shitload of meds.
I was referred to an ENT dr (appt yesterday) to see if any connection between eyes and any potential prob with nose. Apparently not. But he was going on about being on so many meds, and side effects, and whether actually some of it could be sleep related, and I should do a sleep test, but my insurance won't pay for it (not in uk). He thinks the allergy stuff could be a result of all the meds.
I am becoming aware that there are a lot of different opinions from my doctors.
I'm just at my wits end. I don't know what to try to a tackle first. I think I need to have a medication review or maybe see a pain specialist as my GP (who incidentally I was originally referred to because he was knowledgable about pain) just says I have to put up with side effects or put up with pain.
Thanks to anyone who got to the end. I'm probably beyond help here but hand holding would be nice.
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General health
I am a complete wreck
12 replies
MountainDweller · 20/07/2016 06:44
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