following years of chronic pain and multiple symptoms I have just had some rheumatism blood tests back and have a connective tissue disorder. The GP couldn't be anymore specific and could only say it's possibly fybromyalgia or lupus but it could be any number of things. He is making a referral to the rheumatology department in the hospital. I am in the Uk.
I have tried googling but the disorder covers a massive range of conditions so I almost feel it's not worth trying to find out more until I have been to the hospital.
i have scoliosis and have just been diagnosed with hypermobility and borderline hypermobility syndrome.
i am seeing a specialist physio who says that my pain receptors aren't working properly and that some of my muscles have 'switched off' possibly to compensate for my scoliosis.
I am 41 and have two children, my symptoms really got bad in my first pregnancy.
can anyone tell me how it works after initial diagnosis and referral?how long does it take? what happens next?I just don't know where to start and can't bear the waiting!!! Thanks so much
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General health
Connective tissue disorders
16 replies
celestialbows · 17/10/2013 07:12
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