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Adult facial tics....please help

(9 Posts)
crikeybill Tue 07-May-13 14:25:58

I am starting to think I am going a bit mad.
I wonder if anyone has any experience with facial tics in adults ?

I have always had weird little tics elsewhere in my body from the age of about 11ish. They have only ever been slight, blinking, nose twitching, finger stretching, arm and leg stretching etc. All of which I have been able to do discreetly so no one really notices hmm

In the last 5 years or so I have had a twitch that involves me stretching the left side of my jaw down. Sort of like making a sad face but with one side only iyswim ?
However, its got worse. A lot worse. I now have to do it and hold it, for ages. ALL THE TIME ! Its not a couple of times an hour, or every few minutes, its ALL THE TIME !! Afer speaking, before speaking, when im eating, drinking, all the bloody time ! People have now noticed blush although no one has said anything at work but I have seen them notice. My kids have noticed becuase my dd's have asked what im doing and my DH blush has noticed. DH has been great and just nver mentions it but Im despairing now.
Its getting worse and worse, I have to hold it for longer so it cant be disguised and in the last week or so it has extended to me now needing to stretch my neck and arm on the same side at aweird angle. it CAN NOT be hidden anymore and it is making work really difficult.
Im a manager in the NHS and come into contact with people all the time.

I dont know what to do. DH reckons of I go to my GP they might give me some sort of medication but im scared.
Ive never mentioned it to a GP ever, so ive never told them any of this and there is nothing on my notes.
Ive googles chronic tic dosorder so many times and according to them it gets less as you get older but mines def getting worse !
Plus my dd1 ( 10 ) has now developed some tics and I just feel worse that its clearly my fault.

HELP ????? Anyone had this ? Do this ? I dont know what to do sad

GranToAirMissiles Tue 07-May-13 14:42:50

I had a jaw tic like this, tho not so bad as yours sounds. GP sent me to clinical psychologist, who taught me relaxation. This helped a bit, tho not completely. I later noticed a link with alcohol, then discovered that wine sometimes contains Sulphides which trigger a sort of neurological allergy that can produce tics. This was the answer in my case. Wines have to show if they contain Sulphides on the label.

LandOfCross Tue 07-May-13 14:49:40

My total sympathy.
Mine is getting worse too - nose wrinkling and blinking.
I find it gets worse at certain times of the month. I take magnesium which is supposed to help...
Watching this thread with interest.

noddyholder Tue 07-May-13 14:51:31

b12 deficiency

crikeybill Tue 07-May-13 15:03:33

Really a B12 deficiency ? I had a FBC taken a few weeks back for something else and I looked it up here at work and my B12 was down actually.
Can you expand noddy please ?

landofcross its horrid isn't it sad I feel like a total freak to be honest. I have my own office at work and end up locking myself away which has also been commented on sad.
Ive never taken mgesium either ? To be honest ive hardly dealt with this at all yet its getting out of hand !!

noddyholder Tue 07-May-13 15:19:03

I have been having monthly blood tests for over 30 years as I had a transplant and no one ever checked my b12. About 4 years ago I started getting tics and dizziness and numbness/tingling among other things. My doctors just said well you have a lot on etc etc but didn't take it seriously. The twitching and unsteadiness and tired feelings got worse and they suggested MS which was terrifying and I had an MRI which was clear. My GP requested he see my blood results and he spotted it straight away. I had loading injections and then 2 monthly and made a great recovery. There was a new nurse last time who decided I was having it too often and said I only needed it every 4 months and I went downhill rapidly. Its due tomorrow and my GP is going back to 2 monthly as I am symptomatic now Please get it checked its a killer! Have you other symptoms? Are you vegi or taking antacids or coeliac?

noddyholder Tue 07-May-13 15:19:23

What was your b12 level

crikeybill Tue 07-May-13 15:29:58

I dont have any other symptoms really ?
Im not vegi or taking antacids no.
Its really like I have Tourettes or something ?? blush
Ive always had it, as I say from about 11 so would that have been happening for that long ?
I am not at my desk till tommorrow so cant check my FBC, I will do though and post them on here.
Thanks smile

Roseland Tue 07-May-13 15:30:45

I have had something very similar - it came on quite dramatically in pregnancy and resembled me having a stroke so I sort of skipped the bit where you see a GP and went straight to the consultant. I was eventually diagnosed with dystonia. This made my face contort or eyes twitch. I also got slurred speech at times too. It got steadily worse for a couple of years (spreading to other parts of my body) but I hardly get anything now. I think mine was stress related.

You should probably go to the GP to get checked out. If it is something like dystonia they can show you ways of helping (like if you touch your face when it happens it stops for some reason)

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