Benign intracranial hypertension

[Krumbum]

Anyone else have it? My symptoms seem to be getting worse. Finding losing weight so hard :( and acetazolomide appears to do nothing. My vision is ok but goes funny in the mornings sometimes. The thing I really hate though is the loud pulsating whooshing sound in my ear. Argh! It makes getting to sleep a nightmare! Anyone else have that symptom badly? Any tips on dealing with it and all ih symptoms? I just want this to bugger off!

[SparkleRainbow]

I am sorry, I can't really help, but I didn't want you to go unanswered. You must be feeling really rubbish. Can the gp give you something to help you get to sleep, being tired on top can not help.

[Charlottemerwiak]

I was diagnosed with this adequate years ago. If you still wanted to chat about it. I'd love to also. (I quite like the whooshing sends me to sleep).

[Charlottemerwiak]

A few sorry not adequate. Lol