I'm having a bad day. It started at 8pm last night where it felt like I had run ten miles and it was spreading from my fingers right down to my toes. I went to bed at 9pm and had a really shit nights sleep and stayed in bed until 12pm. Now I'm downstairs and I can barely type and all I want to do is cry.
The pain is ridiculous and co-codamol isn't touching it but I have two DD's age 3 and 8 months to look aftet and I feel like curling up into a ball and waiting for it to pass.
A rant more than anything but advice would be excellent.
I have fibro and I take Tramadol as codeine makes me feel gnarly and generally worse all round, as well as not being very effective on the pain.
Have you had a medication review with your GP recently, or been referred to a pain clinic or rheumatology clinic?
I keep forgetting to ask my GP but I mean to get some Zopiclone or something for when I can't sleep. Sleeplessness is a symptom of fibro isn't it (my sleeplessness is caused by mind racing all night). But IMO a bad night's sleep makes the pain worse next day.
I had to come off the Amatriptyline as it was making me too groggy and giving me chest pain/breathlessness. Infact it made it all worse. To compensate for the pain, i take the very occasional Tramadol and Zopliclone for sleep. I also need a low dose beta blocker for flare ups as I then get rapid heartbeat and palpitations. So far, that combo is working well. But when ds was a baby I thought I was never going to survive. Sometimes I'd have no energy to get out the car and into the house and we would nap there until dh came home.
I really sympathise. I take tramadol and codydramol daily and get injections of pethidine, morphine and medazolam as and when I need. I have a ds who is 4 tomorrow. My ds is amazing though and he is so caring and sweet. His nursery teacher also has it (albeit mildly) and I think she helps him to understand. My dad had to move in though to help me as when dh is at work some days I just cannot move and just want to cry all day. I also get awful fatigue.
So many people just don't get how awful it is having fibro. Big gentle hugs to you all
Fashionista,, if your GP is not willing to prescribe you anything else, it might be worth changing surgeries. I was with my old GP for twenty years and all he would give me was co codamol and regular 'pep talks'. Clearly didn't believe my illness was real. The new place I joined two years ago have been wonderful, very pro active and understanding. It's like night and day, the difference in their attitudes.
You just don't sound like you are getting nearly enough support and I have been there, it's so lonely and frightening. I was shocked at how ill I was and yet was left alone to just 'get on with it' with no advice or treatment. You need to start kicking up a fuss.x
Hugs to you too helibee, you sound like you are having a really tough time of it. It's odd but I also take comfort from knowing that I'm not suffering alone, not that I would wish this illness on my worst enemy, just that it feels like company in a dark time.
Gotta look on the bright side! Poor DD's have been all about DH and my sister so I can't wait to feel well enough to do something as trivial as lay on the fliir and write numbers on the etch a sketch with them .