Talk

Advanced search

Mumsnet has not checked the qualifications of anyone posting here. If you have any medical concerns we suggest you consult your GP.

Fucking Fibro

(17 Posts)
Fatshionista Wed 17-Aug-11 13:36:11

I'm having a bad day. It started at 8pm last night where it felt like I had run ten miles and it was spreading from my fingers right down to my toes. I went to bed at 9pm and had a really shit nights sleep and stayed in bed until 12pm. Now I'm downstairs and I can barely type and all I want to do is cry.

The pain is ridiculous and co-codamol isn't touching it but I have two DD's age 3 and 8 months to look aftet and I feel like curling up into a ball and waiting for it to pass.

A rant more than anything but advice would be excellent.

bacon Thu 18-Aug-11 13:39:15

I used to suffer but after 10 years my symtoms has subsided. I understand. When I get some pain I take two paracetamol and two ibrof.

It doesnt help not getting sleep.

I understand your fustration its terrible. Anychance you can get some family help or pop the children into childcare for the odd day?

Fatshionista Thu 18-Aug-11 16:00:53

No childcare but DH helps as much as he can as he's been made redundant.

Paracetamol, codeine 8/500 and 35/500 and ibroprufen doesn't touch it for me. I take the edge off with codeine but I'm still buggared.

Your symptoms have subsided and that gives me hope. It is day 3 and I can barely walk.

Mandy2003 Thu 18-Aug-11 16:21:53

I have fibro and I take Tramadol as codeine makes me feel gnarly and generally worse all round, as well as not being very effective on the pain.

Have you had a medication review with your GP recently, or been referred to a pain clinic or rheumatology clinic?

I keep forgetting to ask my GP but I mean to get some Zopiclone or something for when I can't sleep. Sleeplessness is a symptom of fibro isn't it (my sleeplessness is caused by mind racing all night). But IMO a bad night's sleep makes the pain worse next day.

Good luck OP, hope you feel better soon.

Fatshionista Thu 18-Aug-11 17:06:56

I've been to the GP today who put me on stronger codeine and Gama but the codeine is not touching the pain and just making me feel high, fuzzy and useless.

I've been to the rheumatologist to diagnose me but he then referred me back to the GP for meds.

To make it worse my smear test showed borderline cells and I have to go for a repeat on Wednesday as I'n bleeding after sex sad

perfumedlife Fri 19-Aug-11 00:51:05

I know how you feel op.

I had to come off the Amatriptyline as it was making me too groggy and giving me chest pain/breathlessness. Infact it made it all worse. To compensate for the pain, i take the very occasional Tramadol and Zopliclone for sleep. I also need a low dose beta blocker for flare ups as I then get rapid heartbeat and palpitations. So far, that combo is working well.
But when ds was a baby I thought I was never going to survive. Sometimes I'd have no energy to get out the car and into the house and we would nap there until dh came home.

Thinking of you.

Fatshionista Fri 19-Aug-11 14:28:00

Perfumed, I can relate. Thank God there are others.

helibee Fri 19-Aug-11 17:50:19

I really sympathise. I take tramadol and codydramol daily and get injections of pethidine, morphine and medazolam as and when I need. I have a ds who is 4 tomorrow. My ds is amazing though and he is so caring and sweet. His nursery teacher also has it (albeit mildly) and I think she helps him to understand. My dad had to move in though to help me as when dh is at work some days I just cannot move and just want to cry all day. I also get awful fatigue.

So many people just don't get how awful it is having fibro. Big gentle hugs to you all

perfumedlife Fri 19-Aug-11 18:18:01

Fashionista,, if your GP is not willing to prescribe you anything else, it might be worth changing surgeries. I was with my old GP for twenty years and all he would give me was co codamol and regular 'pep talks'. Clearly didn't believe my illness was real. The new place I joined two years ago have been wonderful, very pro active and understanding. It's like night and day, the difference in their attitudes.

You just don't sound like you are getting nearly enough support and I have been there, it's so lonely and frightening. I was shocked at how ill I was and yet was left alone to just 'get on with it' with no advice or treatment. You need to start kicking up a fuss.x

perfumedlife Fri 19-Aug-11 18:20:03

Hugs to you too helibee, you sound like you are having a really tough time of it. It's odd but I also take comfort from knowing that I'm not suffering alone, not that I would wish this illness on my worst enemy, just that it feels like company in a dark time.

Speak to your doctor about gabapentin or pregabalin, failing that amytriptiline or nortryptiline. You need more than an analgesic for long term pain relief.

Fatshionista Fri 19-Aug-11 22:17:42

Gabapentin seems to be fine with me so far. I'm on 900mg a day to start with and my doctor prescribed it without hesitation due to my history. I hope you get some help.

perfumedlife Fri 19-Aug-11 22:21:17

Fatshionista, I do apologise, I have been calling you Fashionista all day and you were polite enough to not mention it, bless you blush

Mandy, definately ask for the Zopiclone, it does help and has less groggy side effects. I take 7mg.

Fatshionista Fri 19-Aug-11 22:27:55

Oh, I don't mind wink. To be honest I hadn't noticed. You could call me Fatbitchwhoshouldfuckoff and I'd only see "Fat" and think 'Ooh, a message for meeee?' Self obsessed, me!

perfumedlife Fri 19-Aug-11 22:41:02

grin God, you're still laughing despite the day from hell you've had, that makes you Fabsionista to me.

Fatshionista Fri 19-Aug-11 22:45:11

Gotta look on the bright side! Poor DD's have been all about DH and my sister so I can't wait to feel well enough to do something as trivial as lay on the fliir and write numbers on the etch a sketch with them grin.

Fabshionista. grin That's rather good!

Fatshionista Fri 19-Aug-11 22:45:28

The fliir? The floor.

Join the discussion

Join the discussion

Registering is free, easy, and means you can join in the discussion, get discounts, win prizes and lots more.

Register now