I've just been diagnosed with partial epilepsy. At the moment I'm having dozens of seizures a day but I've started anti-convulsant treatment (Keppra) and am optimistic things will improve.
We have a beautiful 13m old daughter and I am incredibly broody. My neurologist has darkly warned me that I must not become pregnant whilst taking Keppra, and that I must get the seizures under control for a few months before we can discuss reducing the dose or trying anything else. Given the severity of my current symptoms not taking the meds is not an option.
So it is going to be a good few months before we get cracking on trying for another child. But the epilepsy makes me a bit fearful about how I will cope. One of my main triggers is sleep deprivation (with hindsight I can see I have had some very intermittent seizure activity for years but it never interfered with my life before so I guess the fact my daughter woke every 1-2hrs for the first 6m was a major reason why things have become so bad).
I'm also concerned about breastfeeding and medication since it seems like Keppra in particular is present in large quantities in breastmilk.
And I'm a little frightened that if my seizures are not controlled I won't be safe to look after a baby. I have myoclonic jerks and although I find holding DD on my jerky arm tends to reduce the amplitude of the movement I would be frightened of suddenly dropping a newborn.
So I'd really appreciate hearing from other parents with epilepsy about how they coped.
Thanks in advance.
Please or to access all these features
Please
or
to access all these features
Mumsnet doesn't verify the qualifications of users. If you have medical concerns, please consult a healthcare professional.
General health
Any parents with epilepsy out there?
2 replies
VeronicaCake · 28/06/2011 10:26
OP posts:
Please create an account
To comment on this thread you need to create a Mumsnet account.