Mirena Coil and Joint Problems

[AA47]

Hi. I have had a mirena now for 5 years. I had one for four years and a year ago I had it replaced - so that's five years in total. I have experienced aches and pains over this time. First I had a severe hip pain that had me limping and unable to roll over in bed as it was so severe. This was first diagnosed as a labral tear, i had physio that didnt work. I was then told osteoarthritis but scans showed similar joint damage on both sides but pain only on the Ieft. This has now settled from the initial accute pain but i still have hip troubles. I have lower spinal pain. Knee pain. Neck and shoulder pains both sides and weak upper arm muscles. I was very active and a keen swimmer clocking up over 5k a week. I can no longer swim as I can't rotate my arms without pain or kick without aggrevating my hip. I was treated for a frozen right shoulder last year but even now I have movement in my shoulder I am still in pain. Getting in and out of coats and jumpers is a task! I have just turned 47. I am not overweight. I have a healthy diet. I struggle now with exercise due to my joint and tendon / ligament pain. I used to be extremely flexible but not hypermobile. The gp has run blood tests for rheumatoid arthritis but all is negative. I have researched that mirena can be linked by some women to this kind of pain. I am planning to have it removed next week as I am so desperate for some relief. There may not be a link at all but I can think of no other major change in my life in the last 5 years. Only aging and possible perimenopause but surely the pain I am experiencing can't just be age related. I feel more like 80 in the mornings as I struggle to roll out of bed! Any ideas or similar experiences. Many thanks

[SarSpud]

Hi, I’ve just stumbled on your thread, did you get your coil removed and did your pain improve? I’ve got a coil and have the same issues you describe. Hip pain, labral cyst, back pain, leg pain ☹️ Thanks!

[Hollic]

Hi I have the same symptoms and have been in agony. Did the removal of the coil make a difference? I had a replacement coil fitted had been thinking I had Long Covid but am now wondering whether the coil being changed has caused this. Pain originally in groin and back of legs now more so in back of neck shoulders and tops of my arms.

[RagnarorBjorn]

I'd be interested to know too. I'm having my mirena removed tonight after 3.4yrs, I also have a whole host of symptoms including neck/ shoulder issues, it would be fantastic if it is linked to the coil and I can finally be pain free again!

[lookdeepintotheparka]

Me too! I know it's an old thread but really interested as have tendon problems which have become much worse in the last 6 months. Had mirena for 4 years.

Currently have to wear knee and hand supports most days. Awful neck problem too. Am otherwise really fit and healthy but have had to stop running/exercise due to the pain.

[Hollic]

Hi just seen your recent posts thank you for joining in as I thought I was going mad! my mum sent me an article from April’s YOU magazine which shows women in agony from using a coil called Essure which was withdrawn from Uk market in 2017 made by Bayer. I had got Covid early last year started get back to normal in summer but in November from running regular 6ks started with pain in left groin and back of thighs. Then pain in neck shoulders and the tops of my arms. My arms are agony and am taking Naproxen to help manage pain struggle getting dressed snd undressed and drying my hair. I have seen a consultant had X-rays and bloods checked nothing came back. Really considering taking this second coil out. Had my first in for longer than 5 years and then had it replaced. I am wondering if this is causing my pain snd going to speak to the doctor

[Hollic]

Just checked and Bayer make Mirena Coil the same company that made Essure that is now banned!!!

[Hollic]

Hi can you let me know if your pains ease by the removal of the coil? I am seriously considering it also

[RagnarorBjorn]

I will report back, hopefully with good news.

[Hollic]

Thank you and Good Luck 🤞

[1310107HRT]

Hi there
I've recently been diagnosed with relative arthritis and was hospitalised for 2 weeks. Before that I've had 2 weeks of horrific pain and a HUGE amount of swelling and inflammation in my right knee and right index finger. It's debilitated me. I have been put on steroids and have had a cortisone injection in my knee. The swelling has reduced in my knee but not finger. The pain is still intense. The diorreah I had from the detox from codeine and morphene is horrific and I have restless leg syndrome and awful night sweats. I was a healthy happy person till March. I've had issues with abdominal pain so they decided to try me on the coil on 2nd Feb. I didn't put a link together but I'm starting to think there is a causal effect especially after reading this. I've had more blood tests than I can count, ive had 2 operations and I've been immobile for so long I've got severe muscle atrophy everywhere. It's caused back pain and wrist pain as well as the usual knee and finger agony!

I am usually healthy, positive and perky! I eat like 15 veg a day and am so good with nutrition etc.i exercise usually. I can't even walk now without a crutch. I've been off work for a month...

Has anyone else had this and have they had relief after taking the coil out?

I'm waiting for my doctor to call me back so I can get my coil removed but knowing the NHS I will have to wait weeks to get it out.

Any advice appreciated xxx

[1310107HRT]

Hi Hollic. Did your pain subside?

[Hollic]

Hi Ragnaror Bjorn have you noticed any improvements since having the coil removed? I’m waiting for an MRI and if no joy I’m having it removed anyway as I seriously think Bayer have changed the coil since I had it fitted last

[Hollic]

Hi 13101007HRT not had it removed but seriously considering it I don’t trust Bayer since reading the Daily mail article on Essure coil which is now banned. It has ruined so many women’s lives in fact on Monday I am speaking to the doctor as I am sick of waiting around for an answer

[Hollic]

Just spoke to another lady on a menopause Facebook group called Feeling Flush which is an excellent support group she has similar symptoms and guess what she has Mirena call recently fitted in 2019!! There just seems to be too many to be a coincidence

[RagnarorBjorn]

@Hollic

Hi Ragnaror Bjorn have you noticed any improvements since having the coil removed? I’m waiting for an MRI and if no joy I’m having it removed anyway as I seriously think Bayer have changed the coil since I had it fitted last

Hi Hollic, I've been waiting for my body to settle since having the coil removed but I've not got a huge amount to report really.
I'm still having neck and shoulder issues, perhaps not to the same level of pain but I've also started a new medication so it's hard to know.

[Hollic]

I hope things improve for you. I agree it will probably take time for your body to settle. Please keep this thread updated if you find any improvements as I am finding more people by the day with similar symptoms to ours with the Mirena as the common factor being fitted recently

[Lesley1969]

Hi,
I have been following thread about coil.and body aches, I have had coil for 6 months now and on hrt patches. My body isin pain constantly and I have been to docs several times now. They dont get how much pain I am in and have advised physio now!I know this is not the way forward as its a different type of pain I have.
I am going to make an appointment tomorrow to get coil removed as it is now impacting on my life.
I am generally an active person but my joints ache so much its an effort to do anything.

[Lauz82]

Hi, just looking through this feed and am so glad I’ve came across it..I had the mirena coil fitted sept 2020 and haven’t felt right for months. Initially it was with mood swings, (nov 2020 ) I rang my GP as my mood was quite low and I thought it was down to the coil to which he assured me the coil is local to the womb and shouldn’t affect my moods and I should persevere with it, I’d also been getting a heavy type feeling in the top of my left arm. GP sent me for routine bloods as I have an under active thyroid and a folate deficiency but the blood came back normal.

Around 4 weeks ago I started to get numbness in my hands, tops of arms feel like I’ve been punched in them and I generally feel under the weather. Rang the GP who sent me for more bloods to check B12 and iron levels which again have all come back normal, again i mentioned to the GP I think it’s the coil to be told again he doesn’t think so as it’s localised to the womb....I also mentioned the acne I have under my chin which I’m have never in my life suffered with.

I had the coil fitted to ease symptoms of endo, I was due for an op last year but because of Covid I’m now on a waiting list and thought to try and ease my symptoms I should have the coil. Wish I’d of never have bothered, since the day I had it fitted I bled for 3 weeks, and even now I dont know when I will bleed but when I do it can last anything from 10-16 days, although the pain of endo has got better, but I’m now irregular and bleed for much longer and on top of all these other symptoms feels like there’s no end as trying to convince my GP is wearing me out.

[Jobelu]

Hi. Just Come across this discussion. I'm the same as you all except I had the mirena taken out because of these problems . Was only in 18 months. Was taken out 16 months ago and pain hasn't gone and have been diagnosed with osteoarthritis. I'm convinced the mirena has caused it

[Hollic]

Hi everyone just to update you I didn’t get the coil removed but am still considering it. I had the results from my MRI scan and I have degenerative disc disease of the spine! If you google it it refers to pain in the shoulders and arms and pains in the back of legs! Cervical spine and Lumbar spine. Like the earlier post I wonder if the Mirena coil has caused it 😡 there is no real treatment just ways to manage it and don’t want spinal surgery. I think the removal of the coil is my next option as I want to get anything unnatural out of my body!! Good Luck ladies

[cjcaz]

Mirena placed 2011 and removed 2017. I didnt want another after 5 years and as menopausal Dr suggested I keep for another year. July 2012 developed ankle pain which was thought to be classic arthritis but then x rays and surgeon said it was not arthritis but I didnt find out till 2014. Fortunately I declined the injections offered. Long story but I was diagnosed with neuropathy as nerve tests suggested I had permanent nerve damage. Pain moved to include feet. Upon removal of mirena I could run and little pain for about 10 days, then I had what is described as a mirena crash and hormones went into overdrive - electric like shocks through limbs and massive twitching. Tried to take natural hormones - progesterone cream in Feb 2018 and then estrogen (via pueraria-mirifica) - anyway all the hormones seemed to have an affect - small improvement but then i was told to increase and so difficult to find a balance. Ended up all over the place and spaced out - saw a gynae privately who suggested I stop all hormone replacement which I did. 1.5 years on, I am still a mess but after a year I put on some weight (I was very thin) and the pain seems to be over a smaller area but as intense. I hope that my body is repairing but have no idea. Weirdly for several years the pain is there daily in my feet, ankles and legs but every other day it isnt as bad. So my life is good day - go for a walk: bad day sit on my backside. Anyone have any ideas - there are tonnes of women on facebook groups for the mirena with similar issues. All say it is a matter of time but I have been in pain now for nine years.

[Hollic]

Hi everyone, latest update is I am seeing a herbalist to see if she can help with my pain. I have also had the Mirena removed as i do not trust it at all. My pain unfortunately is no better but i am managing it with herbal medicines and over the counter tablets such as ibruprofen or cocodomol and have only been on the herbal medicine for 4 weeks. I was told to take Pregabalin or amitriptyline but i am sick of trying drugs with horrendous side affects. Will keep checking and updating this site in the hope that someone has answers to why we are getting pains in our legs, neck and arms. I'm still struggling sleeping and in pain when i get up from a chair, getting dressed etc. Also going to look at my diet but my biggest issue is being unable to exercise!

[Starrr123]

@Hollic how are you now ? Xx

[mp22]

Hi ladies, so glad I've come across this post. I had the mirena coil fitted in October 2021. I haven't been right since I feel crippled in pain mainly my back, hip & neck but my body feels generally very weak. I was able to go to the gym I no longer can I'm not the same person. Doctor has said there's no connection but it's very strange to me I haven't felt right since. Im now being referred to orthopedics I had physio but didn't make a difference. I'm in agony everyday 😭

[Maltho]

Hi ladies
Just joined mumnet to add to this thread. I had a merina coil fitted 10 years ago and it was very successful. However, after 5/7 years the hormones stop working, but as i was approaching 50 so decided against a replaced, as advised it could stay in. At 53 i started getting a few hot flushes. I went to a hormone specialist who recommended I replace my Mirena coil (and oestrogen gel). I did so 11months ago. 11 months ago, apart from a few hot flushes, i went to the gym religiously every day sometimes up to 2 hrs a day. Hilt, body pump, circuit training, and 4 boot camps a week. . I was super fit 8st ( probably too thin) and never had an ache or bad joint in my life . Not anymore, within a month of me having the mirena fitted i started with neck ache, admittedly mild, but annoying. A free weeks later I got chronic, debilitating hip pain, whereby i went to a physio for months. Still not completely right. Then it moved to my sciatica joint which, had me in bed and crawling to the bathroom. I’m under an osteopath now!! I can’t remember what a gym looks like (9 months since i’ve been)and I have gone from 8 st to 9st 10 in less than a year. If that’s not a coincidence, then pigs fly. Since reading some forums over the last few days I have booked to have my mirena coil removed i’m so desperately worried about my situation . I feel like an 80 year old crippled with chronic joint issues. It’s become a family joke. My own mother can do more than me. My sister is a clinical specialist nurse and is on the fence about my reaction to remove it, saying It’s all false news. How can this many women have the same issues within months of having a new coil fitted and why is the Mirin’s coil being taken to court in the state’s because they believe it contain an enzyme that attracts otherwise health joints of one in every 40 women and choose not to mention it!!!. So roll on May 5th. Will keep you posted on my progress