My Dad has had Alzheimer's for the last 10 years and is now at end stage. He has been bedridden (in a fantastic nursing home) for a year, no longer speaks or makes any sounds , is fed and given fluids by carers and spends 95% of the time sleeping. In the past 2 months he has had pneumonia twice. on Thursday I was called late at night by the doctor, who said he was very poorly and asked if I wanted him to go to hospital. I have already spoken with my family and we decided that we didn't want to put Dad through this so I said no.
Back story, Dad saw his father go through Alzheimer's about 30 years ago, very traumatic and he always used to say that he didn't want to or wouldn't want anyone else to go through what he called "the utter humiliation of being cared for like that". Also, around 18 months ago when he was still mobile and speaking but he hugged me and said "I've had enough I really have".
Anyway, Dad had a very long and distressing night where his breathing switched between being very laboured and rattling to being very shallow to the point that I thought he had stopped breathing. In the morning the nurse told me that his obs had deteriorated and it was time to call my family. I did and my sister and aunt duly arrived.
We spent the day with Dad and although he hadn't been given any fluids or food during this time he appeared to pick up and was a lot more comfortable.
So, the nurse asked me today if we wanted the doctor to prescribe anti biotics for Dad to help clear up the infection. She said that she thought the doctor would prescribe them but wanted to know how the family felt. She said that Dad would continue to get infections and go through this and it could continue for a few more months.
Now this is the upsetting part, I'm not sure that clearing up the infection with antibiotics is in Dads best interests, if he is just going to end up in the same situation again. Plus I know he would be absolutely horrified at the situation that he is in.
So the doctor duly came and said they wanted to give him antibiotics which he is now having.
So, my question is, can the doctor continue to insist on giving my Dad antibiotics that may help him to live a little bit longer or can we ask that they stop this and,as long as he is not in pain then just let whatever happens happen.
Of course I know that the drugs may not even touch his infection and he also may fight it off on his own. But I am worrying myself silly thinking about what Dad would want but als struggling with the moral responsibility of it all but then I don't know if the doctors will take our thoughts in to consideration or even that what I am thinking is acceptable.
Sorry for the long post but I think writing it down this far has helped.
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Elderly parents
Withdrawing treatment for end stage Alzheimer's Dad (upsetting)
8 replies
Uglykidflo · 13/02/2017 08:29
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