My Mum has 3 to 6 months to live. She has Lewey body dementia.
She's in hospital being very well cared for. I live a flight away from my hometown and have a small baby. (Baby isn't allowed on the ward so visits have to take place in another room). I'm going back for a week once a month for the foreseeable future.
Mum has very limited movement and gets quite distressed sometimes being moved to come to the phone. She won't use her mobile any more.
I also suffer from anxiety (in part because of what's happening to Mum). Seeing her is even harder than trying to speak to her - she says very little.
When we are back it's horrifying seeing her basically starve to death.
The guilt is horrific - I just can't help her and I feel I should be with her 24/7. I'm sitting here in tears because I've built myself up all morning to call the hospital and they're not answering - I know they're just busy.
Should I be there 24/7? I'm married and am trying really hard to build a network here and being back is incredibly hard.
Sorry it's long.
I feel like I'm putting my needs before hers and I'm so confused about what to do.
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Elderly parents
Can't bear talking to her.....
19 replies
Trooperslane · 09/03/2014 11:05
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