Any experience hypermobility with tantrums

[Bonnetcreek]

Hi, ds has just been diagnosed with extensive hypermobility.
He’s in y1 and has been in trouble at school for defiance to teachers and lashing out at kids. This isn’t daily or even weekly but seems to be roughly once or twice a month. I understand anxiety and fatigue goes with his diagnosis. His teacher’s been quite uncaring and I’ve been told by someone who works at the school she openly moans about the kids that cause her “hassle” in the staffroom, mentioning them by name. I know this includes ds and that he’s been branded a trouble causer. When we shared his diagnosis with her she was dismissive and said he’s probably got other linked issues and mentioned adhd and autism.
We’ve just been to the gp who says he’s a normal boy who will have to work very hard to put in a normal day like his peers. He’s refused to refer him for behavioural issues. My gut instinct is that the gp is right. Ds isn’t acting up daily.
Has anyone got experience of the anxiety and frustration that being very hypermobile can bring?
We’re finding ourselves isolated by the school staff and somehow on the back foot. Ds is a kind sensitive little chap, he’s also v clever and reading at the top level of book and in top spelling set. We feel school have labelled him and his teacher can’t be bothered handling him professionally.
Thanks for listening and any insights will be appreciated
X

[Disgustingwoman]

My DD has this and is an anxious child. She has associated sensory processing difficulties which I didn't understand at first. Basically the hypermobility means that she has poor proprioception - she struggles to know where she is in space and relation to herself and others. It began with hysteria over lining up with her class, as soon as I told her OT this, she clicked on straight away. She does have a range of other difficulties too, which exacerbate her anxiety. Her first school were dismissive, but her second school have been much better.

[Bonnetcreek]

Thanks Disgustingwoman, we’re on a learning curve and I appreciate your help. We have a great ot and she’s explained the link with anxiety. I’m realising that all his behaviour and quirks are linked to his bendiness x