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6yo with underactive thyroid and suspected Raynaud's

(3 Posts)
tanyadm Sat 18-Feb-17 21:18:28

Does anyone have experience of a very young child with thyroid issues or other autoimmune problems?

Daughter is nearly 7, she has had dry, rough skin on hands for about 18 months. We assumed allergies/psoriasis/eczema but recently took her to GP as her hands have started going very cold and grey/purple even in warm conditions. She has always struggled with energy levels despite good diet/exercise and sleep.

Blood tests came back on Thursday and TSH is high, T3 and T4 normal for now. Other tests which would show autoimmune involvement not back and she is being referred to an endocrinologist and rheumatologist.

There is a strong family history of autoimmune disease, including me, but nobody else was affected/diagnosed until 20s/30s.

Anyone else?

oce3 Fri 07-Apr-17 22:35:37

Hi, I have a 4 (nearly 5 year old ) boy who appears to have raynauds.
His fingers often turn white very suddenly. Sometimes just two or three fingers at a time and it's very obvious to look at it and appears to cause him discomfort at times.

The gp said it's extremely rare in children especially boys so has referred us to the children's hospital. This was in January, unfortunately our appointment isn't until June! I'm also wondering if it might be a thyroid issue. We are also having issues with his behaviour and he is very emotional (still has melt downs) and I'm wondering if it could all be connected.

I see your post was a couple of months ago. Has anything else come to light since being referred to an endocrinologist and rheumatologist?

cheesecadet Fri 14-Apr-17 11:34:54

How's things, how did the other tests go?

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