PUJ - Pelviureteric junction obstruction

[Enkopkaffetak]

Has any here had a child who was diagnosed with PUJ (Pelviureteric junction obstruction)

If so who long did it take from the early diagnosis (MAP3 and scan done) and referral to specialist?


Currently watching ds (age 13) on the sofa in pain for the 23rd time this year just waiting for him to start throwing up. Loosing patience with the waiting game and hate watching my sporty energetic son in pain.

[Oldmum55]

Sorry Enko no experience apart from one of my boys suffering from urine retention, (same age as your boy) no physical cause was ever found, even with MRI scan. Put down to psychological which at the time didn't convince me, luckily it eventually resolved on its own. Get in touch/enquire with GP/specialist's secretary hoping to speed things up.

[strawberrypenguin]

My son had a PUJ obstruction but it was from birth. He had the mag3 dye scan at a couple of months and was operated on at 4 months he was also on antibiotics from birth to try and stop any urine/kidney infections before surgery (which it did in his case) sorry probably not very helpful in the context of an older child. I hope your DS feels better soon

[Enkopkaffetak]

Thank you both.
Strawberry what type of operation did your dad have?
I am going to phone GOS and ask about the wait.
He is still throwing up today

[strawberrypenguin]

DS had an operation called pyeloplasty whch I believe is standard treatment for a PUJ depending on its severity. Because he was so small at the time it was 'open' surgery so he has a nice scar but I believe laparoscopic can be an option in older children.

[strawberrypenguin]

Throwing up sounds like he could potentially have an infection - have you had him checked by your GP? Or is it kidney pain that's making him sick? The retention on the kidneys does enlarge the affected kidney it's how DS's was picked up. Either way a call to the GP sounds in order.

[Enkopkaffetak]

He has a blockage in his kidney and it is enlarged. We are under consultation care but currently waiting to be given appointment at GOS where our consultant has referred him.
The throwing up is sadly part of the puj just horrible to watch and not being able to help.

[strawberrypenguin]

It is horrible when they are ill and all you can do is watch - one of the worst bits of being a parent. I hope he gets seen soon