Previous thread here.
Yesterday we got the results of the long awaited MRI. They showed nothing, absolutely nothing.
The secretary who told me acted like she was giving me good news. How can it be good that DD is in constant pain and limping yet no cause can be found!?
Obviously relieved to rule out some hideous possibilities, but nothing?!? How can it be nothing!!!
I don't know what to do really. Am awaiting the consultant's letter, I think I need to push for a dx of Ehlers Danlos which he was reluctant to do previously.
Meanwhile DD is now having physio but HATES it. She manages the exercises for about a minute before she has to stop. We do however have a hyrdotherapy session this afternoon. Hopefully this will be beneficial. We also have an orthotics apt next week. And we are swimming 3x per week. Yet to date nothing has helped and we have no real way forward. Just a few months ago she was fine, dancing, gymnastics, running, now she walks with a limp in pain all the time. How the hell has this happened to her?????? (Actual answers to that q not really expected!).
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Children's health
MRI showed absolutely nothing, yet DD can hardly walk
StandardEEEK · 08/10/2015 14:26
You poor thing. I have no idea what you should do except to say don't be afraid to make a nuisance of yourself. Hopefully some one useful will have better advice. But I really feel for you and your DD. 
Sorry I took so long to type my post (concentrating 
it crosses with yours
about diagnosis. It's hard to have something without a name, particulary when pain is involved, but it shouldn't prevent the pain high exists from being acknowledged and treated.
I am slightly more with it this am 
Just to say I have had a reasonably clear MRI yet have been in excruciating pain so I understand the "yay nothing's shown" v "well wtf is it then" feeling!
I hope you get some proper answers from the consultant. I find taking a pen and notebook and taking notes helps sometimes, both to help you remember and encourage good communication. If you have a sympathetic GP it really helps, my GP referred me to a second consultant once when I had issues with the first.
I think I remember you said she had seen a rheumatologist, there must have been a reason for the referral? If there were sufficient markers to refer in the first place surely this would indicate something?
Disclaimer- I am in no way medically qualified, this is only from a "patient" perspective!
I remember your thread, I'm sorry she's still suffering.
My dd is off for an X-Ray think pm, she has had ongoing hip pain since she was 9, now (17). I really don't think they will find anything 
I suppose a rheumatologist is the best choice automatically for joints?. I just remember when I was initially referred to rheum my GP said something along the lines of I was being referred due to inflammation markers on a blood test, so I wondered if your DDs bloods were the reason.
I was actually referred to pain management clinic before the rheum though and they really helped even though I had, at the time, no official diagnosis.
I'm suffering with my hip badly today so I feel for your DD. It must be awful having this pain at a young age.
Things that have helped me have been, apart from the drugs of course, some lidocaine patches, I also had injections (some steroids some anaesthetic), and not doing too much although this last one is hard to stick to maybe if you can get a pain referral it would be helpful for her
I remember your previous thread. It could just be EDS, you know. EDS hurts , i mean it really fucking hurts, and the tests often come back normal. I have EDS so badly that I'm in a wheelchair as my knees and hips won't support me for more than a few meters. I take opiate painkillers all day everyday and am still in excruciating pain. I have intestinal problems and heart problems. Virtually all my tests come back normal and all x-rays/mris have ever shown for me is premature, but mild, osteoarthritis. This is simply the way EDS is. If she does have EDS, and it does sound very likely, then pain management and physio is the way to go. Remember she might get better when puberty hits
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