DS1 is 7 and was diagnosed with epilepsy yesterday. He had his first seizure on Thursday and his second yesterday, so we haven't really had much chance to process the practical implications.
He is due to have an EEG in 4-6 weeks, and to start antiepileptic medication a couple of weeks after that, so in the short term his epilepsy is uncontrolled.
The doctor has already explained about no swimming, no cycling, no chain saws (!) for the time being, but some other questions have come to mind overnight and I can't find much information on practicalities. Can anyone help?
- Does he need to have someone with him absolutely all the time? Sometimes he likes to play Lego quietly by himself, and he wouldn't appreciate me dragging his younger brothers into his room while he's building (for example).
- Presumably he shouldn't go on climbing frames, up tall slides, etc until his epilepsy is better controlled? How about hide and seek?
- If he has a seizure in the car, and assuming it's safe to pull over, is it better to leave him in his car seat or to try and get him out? I know he's not supposed to be restrained during seizures.
- Can anyone recommend any books? All the ones I can find online seem to be American, and hard to order over here.
- What haven't I thought of yet?
Many thanks in advance.