We have been with gt Ormond street and local hospital before , it's just she has flares of pain and this is the first time I have managed to get her to GP s in time whilst happing to get the bloods GOSH wanted. So it's a step in the right direction in a weird way ! X
Anything over ten is raised.. If your having an infection it will go up in the hundreds (400 etc). It's often looked at with white blood cells levels to gauge an infection. CRP is a lagging indicator, it stays high later than white bloods once you are on the mend. I hope your DC gets better soon!
She has aching joints all the time and then episodes of extreme pain , often accompanied with rashes and then nodules left behind or the rashes turn into bruises . She looks ok but eye sight was 20/20 in march and we are now on second prescription 0f glasses . She has mouth ulcers, and fatigue etc, etc . It's been and is a slog, but we are getting there.
As you may know.. High CRP denotes some infection or inflammation in the body.. This sounds as if there may be some chronic inflammation going on which could be due to several conditions which can be checked out by blood tests etc..if it is all mainly in the joints it may be a childhood inflammatory arthritis but I presume you are under the paeds team then who are looking into it all? Good luck and hope you get some answers soon
Been ruled out as has lupus and most forms of vasculitis , they have said they have an idea but its rare and will need further investigation. Going into hosp next week for 3 days to have bone scans, gentic and DNA markers , and a whole load of other tests. She has been ill for nearly a year and before that had glandular fever ( she is 7 now) at 6 and horrendous tonsillitis at 3 &1/2 yrs to 5 when they took them out . She then last year had adenoids removed as they where rotten ad causing snoozing etc.