HI everyone, I haven't been on here for many years! Sadly our 13 year old daughter was diagnosed with Stargardts disease last week. We have been seeing eye specialists since March and knew the outcome was never going to be great, but the reality is proving hard to accept. Ruby's condition means that her eyesight, particularly her central, colour and night vision will deteriorate quite rapidly over the next couple of years and will most likely reach the point of being registered severely sight impaired before plateauing out. Initially I was relieved to discover that she will retain some vision, but as the days have gone on it doesn't seem like such a positive outcome. Ruby is ignoring it at the moment. I feel bad as I know there are people facing far worse, but I just feel quite lonely and isolated. Just wondered if anyone on here had experience of this condition or visual impairment in general. I think part of my upset is just fear of what the future holds.
Thanks
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Children's health
Visual impairement in teens
2 replies
pinkmama · 05/09/2011 12:50
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