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Eczema and sleeping

(7 Posts)
conkertree Sat 13-Nov-10 17:13:30

Hi not sure if this is the rit place, but looking for others with experience of bad eczema. Ds1 (3.3) has had eczema since he was 8 weeks old, but has ale ays been treated ok at each fkare up with various creams.

Since April though, it's been permanently flaed up to greater and lesser degrees. We've been at the dermatologist twice a week to start with then once a week, and now once a month, and I feel as if we are no longer making any progress, and the dermatologist has just decided that there is not much more he can do (which there may not be, but I'm not quite ready to give up yet).

The main problem is really sleep. He is bandaged most days and every night, but still manages to rub any bit he can find through his bandages which means he can never go back to sleep by himself. He is pretty much permanently in our bed cause we can't leave him to cry or he gets his clothes off, and his bed isn't really big enough for an adult. I don't mind too much cause I think he genuinely needs help to sleep rather than playing us or anything, but if there was a way to help him learn to self settle again, it would be fantastic.

Any one with any tips?

conkertree Sat 13-Nov-10 17:15:13

Sorry reading that back there are a ridiculous number of spelling mistakes - sorry it's cause I'm typing on a iPad and sometimes it changes your word and I don't notice. Sorry I should have read it over before posting. Hope you can read through the mistakes.

LadyInPink Sat 13-Nov-10 17:22:35

No advice i'm afraid but just wanted to say how sorry I am to hear about your little one's discomfort. My DD suffered also from 8wks but it was the infected sort. She is 6 now and suffers occasionally but nowhere near as bad like she did in her first year. She always slept okay so i was very fortunate but would resort to piriton when i was desperate or she was in pain.
I take it the radiators aren't on in his room as that exacerbates eczema and that he has pure cotton bedwear!

Sorry not to be any help but wanted to post to say I can empathise albeit a little.

togoodtobetrue Sat 13-Nov-10 17:45:18

Oh your poor ds sad Have you tried giving him "Phenergan" at night time ? Its an antihistamine . I give this to dd (4yrs) when she has a flare up . your ds sleeping in your bed is not good tbh as the heat from you will make his skin hot & itchy . Have you tried Aveeno moisturiser ? Its great for a cooling effect on the skin . Has your ds been allergy tested ? <hugs>

conkertree Sat 13-Nov-10 17:55:15

Thanks for the suggestions and the sympathy for him -it is distressing to watch it go on and on as I'm sure you both know. He has been prescribed vallergan for the last few months, and had phenergan before that but they only help for a few hours and I don't want to use it every night.

The heaters aren't on unless it's really cold, and he has the cotton sheets/cotton pyjamas etc (although his skin only really touches the bandages) and although I know heat from us might not help, he is much more settled being with us than not. We bought a super king size bed so there is actually quite a lot of room for three grin.

A blood test was taken a few weeks ago so just waiting for results now as he has vomited with eggs since weaning, and recently had facial swellings too - possibly with peanuts as well as egg.

Have tried aveeno in the past, but currently using pro topic twice a week, epaderm at least twice a day and betnovate reducing to eumovate for bad flare ups. It's hard to tell which creams really work when here are so many factors going on at once - could be a cream making it worse, could be an allergy could just be no real cause. I like to find answers but I guess with eczema, you sometimes just have to accept that there isn't always one.

togoodtobetrue Sat 13-Nov-10 18:10:42

It really is trial & error to find what triggers flare-ups & to find out what creams do & do not work . Not sure if he has had the skin prick tests done ? dd had these done earlier on this year & the results were a severe allergy to dust & grass .
Do you have the full zip around mattress dust mite covers ? They are great . Oilatum in the bath water is very soothing . Hopefully when the blood tests results are back you might know what things / foods to avoid .

Flumpetty Sun 14-Nov-10 15:21:28

I'm considering investing in a humidifier for DS bedroom.

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