Hi not sure if this is the rit place, but looking for others with experience of bad eczema. Ds1 (3.3) has had eczema since he was 8 weeks old, but has ale ays been treated ok at each fkare up with various creams.
Since April though, it's been permanently flaed up to greater and lesser degrees. We've been at the dermatologist twice a week to start with then once a week, and now once a month, and I feel as if we are no longer making any progress, and the dermatologist has just decided that there is not much more he can do (which there may not be, but I'm not quite ready to give up yet).
The main problem is really sleep. He is bandaged most days and every night, but still manages to rub any bit he can find through his bandages which means he can never go back to sleep by himself. He is pretty much permanently in our bed cause we can't leave him to cry or he gets his clothes off, and his bed isn't really big enough for an adult. I don't mind too much cause I think he genuinely needs help to sleep rather than playing us or anything, but if there was a way to help him learn to self settle again, it would be fantastic.
Any one with any tips?
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Children's health
Eczema and sleeping
conkertree · 13/11/2010 17:13
Oh your poor ds 
Have you tried giving him "Phenergan" at night time ? Its an antihistamine . I give this to dd (4yrs) when she has a flare up . your ds sleeping in your bed is not good tbh as the heat from you will make his skin hot & itchy . Have you tried Aveeno moisturiser ? Its great for a cooling effect on the skin . Has your ds been allergy tested ?
Thanks for the suggestions and the sympathy for him -it is distressing to watch it go on and on as I'm sure you both know. He has been prescribed vallergan for the last few months, and had phenergan before that but they only help for a few hours and I don't want to use it every night.
The heaters aren't on unless it's really cold, and he has the cotton sheets/cotton pyjamas etc (although his skin only really touches the bandages) and although I know heat from us might not help, he is much more settled being with us than not. We bought a super king size bed so there is actually quite a lot of room for three 
.
A blood test was taken a few weeks ago so just waiting for results now as he has vomited with eggs since weaning, and recently had facial swellings too - possibly with peanuts as well as egg.
Have tried aveeno in the past, but currently using pro topic twice a week, epaderm at least twice a day and betnovate reducing to eumovate for bad flare ups. It's hard to tell which creams really work when here are so many factors going on at once - could be a cream making it worse, could be an allergy could just be no real cause. I like to find answers but I guess with eczema, you sometimes just have to accept that there isn't always one.
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