Carers who need Care ! Who Cares ! No one

[marbaker]

I became a carer 10 years ago, when my son at the age of 17 was diagnosed with paranoid schzophrenia. He was so ill for 18 months before a doctor would come to see him, when they did they charged in with the section team. If i could turn the clock back, I would have made them see him and treat him long before the 3 sections were needed. No one listened and no one cared. My son mightest well have died 10 years ago, I almost did.

[corinewmoon]

Really sorry to hear your story. Are you doing any better now?

[marbaker]

Thanks for sending a message, I hope you are well. Things are up and down, the problem is I have bipola and sometimes Im not well enought to help my son, althought i have no choice... well or not, its all left to me.

My son has been out of hospital for 4 years now and some how we have managed. About 6 months ago, my son became quite unwell and we needed to see a consultant every week. One week in particular I know my son couldnt go on the bus and I had no money. I rang the mental health community outreach team to ask if they could help to get us to the consultants office, they asked me if I thought it was a taxi service.

There help made me feel ill !

[corinewmoon]

Hmm, sometimes hospitals will help arrange transport if you have no means of getting to appointments. I suppose they shouldnt exclude people with mental health problems

[marjproops]

OP I am bipolar myself and am a fulltime carer for my DC who has multiple disabilities.

Its true, wheres the help for the carer?

sometimes its poor DC caring for ME!

Im completely with you on this.

[Horton81]

Hi all,

Reading all your messages and thought you might want to look at www.vitalise.org.uk. My cousin has downs syndrome and wished I could send him here for a break.

apparently they are offering breaks of up-to 80% in February only so might be worth looking into?

H