Is anyone else on Vedozilumab?

[Singlebutmarried]

I’ve had a few infusions, and am usually tired for the day after.

I also usually get the infusions in term time so I can rest afterwards.

This time I got up the next day (after being awake since 3am with kidney pain) and took DD to a theme park with DH.

I sat the last few rides out as felt crap by mid afternoon.

Today is day 4 and I still feel like I’ve got flu type symptoms and cannot stay awake.

Has anyone else experienced anything similar.

[MollyHuaCha]

Poor you. Which illness is the medicine aiming to treat?

I think you should report how you feel to your consultant or GP. Do it soon so they can check your blood for indications of what's not right.

Hope you feel a lot better.

[Singlebutmarried]

It’s for treatment of Crohn’s disease.

The side effects are listed and I get bloods as a regular measure so it’s all being monitored. Just this time the effects have lingered longer than usual. Which I’m guessing is my fault for doing too much, I was just wondering if anyone experienced similar.

[Singlebutmarried]

I’ve also got consultant appt in 2 weeks, so not going to stress too much.

[MollyHuaCha]

There are options for biologics to treat Crohn's. You could possibly ask your consultant if a different one might be more suitable. Good luck.

[Singlebutmarried]

Thanks Molly. I’m on my fourth biological now and running out of options.

Hoping for some new drugs to come on the market soon.

[MollyHuaCha]

I think there will be.

Take care. Hope you feel a lot better soon.

[Cliona1972]

Is Tysabri still in use for Crohn's?