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I think I have one but GP never gets anywhere?

(14 Posts)
DaffodilTime Thu 11-May-17 21:14:02

Hi
I've been abnormally tired for years and used win 16 mile races but even short walks are too much and send me into a grumpy confused mood and state of not coping (I'm 37).

I look really healthy so feel some friends don't get that I can't manage some things and I often get confused (but think vitamin B12 is helping a lot which is a breakthrough.
Another breakthrough came seeing a naturopath who found id developed several strong food intolerances which helped so much.

Does this sound like an autoimmune disease? Can anyone be amazing and give advice Either in knowing what's going on or anything I can do to manage exercise again? I hate going to the GP as they never find anything and I almost think they must think it's in my head

YNK Thu 11-May-17 21:20:26

Taking any B12 oral supplement (even an energy drink) will skew blood tests for more than 4 months and will not help an autoimmune B12d beyond a slight initial boost.
B12d requires injections for life.

DaffodilTime Thu 11-May-17 21:26:29

I never had any until recently and don't remember if they ever tested for it , I justvtemember blood tests being normal other than low white blood counts every time (and low vitamin D which I'm sure ok now).

I hate discussing my health but reached the point where something went wrong as a result of it and I am also so fed up of it limiting me when I still don't understand what is wrong.

DaffodilTime Thu 11-May-17 21:28:45

YNK thank you for that though as I will bear that in mind. I am just relieved the brain fog has lifted a lot so if that doesn't last I'll remember what you've said and appreciate it

YNK Thu 11-May-17 21:31:24

This website will tell you everything there is to know about B12d, just follow all the links.

www.b12deficiency.info/what-is-b12-deficiency/

Bebraveagain Thu 11-May-17 21:39:29

Make sure you get a print out of the blood results. Low (even if in so-called normal range) iron/ferritin and thyroid issues cause low energy and fatigue.

DaffodilTime Thu 11-May-17 21:40:35

Gosh that link could be a breakthrough for me. Thank you SO much as I knew nothing beyond the fact avoiding wheat made me likely to need more B12 but the symptoms list shocked me as i have many of those- infertility , loss of weight, ibs, dizziness. I do wonder whether my levels were ever tested and will see if find any old blood tests. Thank you very very much

Bebraveagain Thu 11-May-17 21:42:41

I'm back to cycling after a year off because I'm taking medication for my 'borderline' hypothyroidism.grin

YNK Thu 11-May-17 22:06:05

Here's a good B12d facebook group

www.facebook.com/groups/PAB12DSupportGroup/

Ekphrasis Sun 14-May-17 22:14:05

Hi,

Don't assume it's b12 - do see the gp. It could be a low thyroid issue.

Other things could be low iron or vit d though I'd imagine not if you like to be out in the sun! (Could be low st this time of year though).

The grumpy, confused mood and tiredness sound horribly like hypothyroidism. You could just be a bit low in b12 as a separate issue.

DaffodilTime Sun 14-May-17 22:45:51

ekphrasis I appreciate this as the main thing is id like an explanation of WHAT is it that's changed my life so much. I do think the GP might have checked it wasn't thyroid when I first mentioned everything but I am keen to re-explore the issue so thank you for mentioning this

Ekphrasis Mon 15-May-17 08:31:15

What's been tested and do you have the results?

DaffodilTime Tue 16-May-17 10:05:32

I had blood tests but I don't know what they tested for which isn't helpful so going to see if I can find them. I also had a colonoscopy as had bleeding in my gut which I think is linked to the food intolerances I got. (I react strongly even to rice now).

DaffodilTime Tue 16-May-17 10:06:45

I was definitely tested for Lyme as had a lot of tick bites and a lab in Germany had said I tested positive but the NHS test then said I didn't have it.

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