I attended a growth scan on Monday (as I had a low pappa result). I'm 27 weeks pregnant. We were told that our baby had a heart problem and went for an echo scan yesterday at fetal medicine. We were given the devastating news that our baby has an extremely rare condition which is an aneurysm in the right ventricle of the heart. Due to the rarity there is no obvious surgical option but they have said we would have to wait until he is born and then try medication and then possibly look at a heart transplant. He is at very serious risk of heart failure/cardiac arrest/sudden death. We have been told to consider termination. This is so scary and upsetting at this late stage but we have to think of the long term and the impact on his 4 year old brother. Has anyone experienced something similar or had a termination at this late stage?
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