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AIBU?

To think he shouldn't cancel urgent scan?

12 replies

TravellingInTheTardis · 25/06/2020 14:18

My 75 yr old dad had a kidney removed two years ago, after RCC was found when he was treated for bladder cancer (unconnected.

It was found in March that he had mets to his aorta. He was put on Paz, to help slow growth.

He's been vomiting constantly, tired and falling over.

The oncologist sent him to A&E last week, who said it was chemo related (he's not on chemo), and they did some bloods, that is all.

The oncologist was furious with them, as he sent him to get MRI & CT scans, as he believes, from the symptoms, that it may have spread to his brain, and possibly his bowel.

Dad has had constipation this week, he cries as he cannot push, and has been given tons of different laxatives and enemas, and has 'overflow', meaning he cannot walk without it coming out.

He was supposed to have a cardiology appointment yesterday, but my sister cancelled it.

Tomorrow he's got a CT of his bowel. The nurse stressed he must attend, as has his oncologist and GP. But my sister and dad want to cancel it. I've got some mega large Tena pads, which I had from a colonoscopy and he can have them.

It's a bit of a journey, as it's an urgent scan, and he'd have to wait otherwise, I fear that if he does have a blockage, that it won't get any better until he's diagnosed...sitting next to a commode all day and being in pain is not much of a life.

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Am I being unreasonable?

22 votes. Final results.

POLL
You are being unreasonable
9%
You are NOT being unreasonable
91%
Newmama29 · 25/06/2020 14:26

I strongly suggest attending this scan! A bowel blockage is extremely dangerous. If they don’t treat his constipation he could end up with faecal vomiting (this is exactly what it sounds like), not to mention needing surgery to repair any bowel damage that could occur & with his age they may not go down that route.

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AllNaturalIngredients · 25/06/2020 14:26

Your poor Dad, that sounds awful. I agree with but can also understand the other side. Big hugs OP, must be so worrying for you ❤️

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NotEverythingIsBlackandWhite · 25/06/2020 14:28

I feel he should go. Is it the fear of leaking that is stopping him from going or the fear of what will be found?

Tbh, if he has kidney cancer, bladder cancer, mets in his aorta, the outlook sounds bleak. He will need pain relief and the best way to receive the appropriate pain management is for the Oncologist to know exactly where the cancer has spread to.

I'm very sorry he is in this situation. I hope he can manage to be pain-free.

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AntiSocialDistancer · 25/06/2020 14:29

Can you arrange a private medical ambulance? It sounds horrendous, but he HAS to go.

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OwlBeThere · 25/06/2020 14:30

He must go as off putting as it must be to have that, they can’t help him without those things Flowers to you X

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TravellingInTheTardis · 25/06/2020 14:31

@NotEverythingIsBlackandWhite I think it's the leaking he's worried about. My sister is getting him some pads, and she knows that I have some too, but he's scared of moving. I do think there's a fear of finding out something bad is occurring is playing on his mind too. I think he's scared as my brother went into hospital over a year ago, and hasn't been out since...he's also scared he's never going to see him again.

The whole situation is totally shit! (Excuse the pun, it was unintentional).

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SuzetteCrepe · 25/06/2020 14:34

Why are they thinking of cancelling it. He can wear the pads. How will he get to the hospital, are they arranging comfortable transport. If he is really suffering they may keep him in hospital.

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Dyrne · 25/06/2020 14:40

I do feel for him as it sounds uncomfortable and embarrassing; but unfortunately I think he does urgently need this scan otherwise things are going to get worse, not better.

Can he try and control the overflow by fasting beforehand or is that dangerous with his other issues?

I think a combination of pads, pants; and maybe doubling up some shorts and trousers may be the only answer. So can he be in the car in incontinence pants and shorts; sitting on a towel and pad; then sister puts some joggers on over everything before getting him out the car and in a wheelchair for the hospital bit? Another pad underneath and towel/blanket over everything could help hide things?

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SuzetteCrepe · 25/06/2020 14:57

Tbh if he is vomiting constantly, cannot poo and is distressed and in pain I would call his oncologist to see if he needs to be in hospital and go by ambulance. Poor man, I hope he gets some relief soon.

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Magic1231 · 06/05/2023 12:09

What was the outcome if you don't mind me asking? Going through the same thing with my 77 year old dad at the moment xx

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TravellingInTheTardis · 06/05/2023 14:15

@Magic1231 I am so sorry you are going through this with your dad Flowers

Unfortunately I cannot remember whether he had the scan or not. Though he must have done, as it was around this time he was diagnosed with primary pancreatic cancer (not a met from his kidney cancer, but a new one).

I know he did not have a blockage however, and once the meds for the kidney cancer were stopped he improved significantly. His oncologist said that the side effects from the kidney cancer were not worth it, considering that pancreatic cancer kills faster than kidney does.

Dbro was hospitalised and died shortly after this post and I'm so grateful that dad was able to spend time with him, which wouldn't have been possible if he was still taking the meds. The whole period of time is a blur, what with Covid, Dbro dying suddenly and dad's illness.

Dad had a scan in Jan 21 (regular one, due to stopping the meds) and it was found neither cancer had progressed.

In April/May, another scan found out that the pancreatic cancer had remained stable, however the kidney cancer had spread to his brain, lungs and bones (and this only happened due to the fact that his meds were stopped).

Dad died of kidney failure in July 21, just a year after my brother.

He was pretty amazing as his kidney cancer was found coincidentally at a scan for primary bladder cancer, so he had three different types of cancer, sadly the kidney was the one that spread.

I really do wish you all the best with your dad, luckily Covid is no longer stopping access to medical treatment, as it was a few years ago, so I hope you get the help your dad needs xx

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Magic1231 · 06/05/2023 20:38

Thankyou so much for replying, I really appreciate it. I'm so sorry to hear about your brother and dad, atleast they're together again ❤hope you're okay and taking care of yourself.

Thankyou for the well wishes 🤞 xxx

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