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to ask if you recognise these symptoms

(16 Posts)
PanannyPanoo Sun 04-Jun-17 09:14:09

My brother in law has been ill for months. unable to leave the house due to chronic diarrhoea. he has had lots of tests and all come back clear. 3 weeks ago He started feeling very unwell and went to bed. He isn't eating. is sleeping most of the time and is sick every time he wakes up. For the past 5 days he has become confused he has double vision and is dizzy no short term memory.
temperature is normal. he is not dehydrated
he has had blood tests that come back as clear. Drs come to the house as he cant get to a surgery they say he is very unwell but cant find out the cause and say he doesn't need to be in hospital yet. as his symptoms don't fit anything they can think of.

Obviously something is causing this. it has been going on for so long and he is getting worse daily. Personally I think he needs to be in hospital. but the gp doesn't.

Does this ring any bells with anyone?

Teddy6767 Sun 04-Jun-17 09:19:27

Is he eating normally? Could it be a food allergy? When I have caffeine I become bed ridden and get the worst nausea and dizziness ever. It can make me feel dreadful all day, even just having things like a cup of tea or green tea.

Another thing that sprung to mind was has he had food poisoning in the last 6 months or so? I had horrific food poisoning in June last year and I was very unwell on and off for about 7 months after that. Diarrhoea, nausea, confusion and dizziness and stomach cramps. Got referred to hospital and turns out I still had the E. coli bug in my stomach after all that time causing havoc

PhuqIt Sun 04-Jun-17 09:19:35

Has he been abroad recently?

flumpybear Sun 04-Jun-17 09:39:04

Has the doctor not even referred him to a gastro clinic?

AVY1 Sun 04-Jun-17 09:41:35

Has he been tested for Chrons Disease or Ulcerative Colitis? The diarrhoea and fatigue fit with both of those. UC can also have an effect on eyes. Is he losing weight quickly? Is there blood and/or mucus in his stools?

ChristmasFluff Sun 04-Jun-17 09:52:38

Has the GP checked his ears? I've seen an unusual presentation of labyrinthitis that was like this. It sounds awful - hope it is sorted soon.

Surfingwhippet Sun 04-Jun-17 10:05:34

Have they tested his sodium and potassium levels

LiviaDrusillaAugusta Sun 04-Jun-17 10:06:19

Sounds awful but I don't think asking strangers on the internet to diagnose him will be much help.

PanannyPanoo Sun 04-Jun-17 10:29:36

Thanks for all your messages.
Livia I am not asking for strangers to diagnose, just asking if anyone has had similar symptoms that we can suggest to the GP - Who are obviously missing something.
As someone with a rare genetic condition that took Dr's, consultants and 5 different hospitals 4 years to diagnose, I am well aware that Drs do not know everything, and there are occasions when other peoples experiences can be useful.

He hasn't been out of the country for years. Ears, Chrons disease and colitis been tested. Sodium and potassium are normal. He has a referral for the gastric clinic, but not til the end of next week and as he is deteriorating we are worried that things will continue to get much worse in that time. No food allergies and he isn't eating. (We initially though food allergies or IBS, chrons etc months ago when is was just digestive issues, it has got so much more worrying since then.

I will ask about food posioning, I don't know if that is something that has been considered.

Thank you so much for your ideas, It really is helpful. He has had emetics to stop the nausea which are causing other side effects, so given meds to stop those, symptoms are being masked, but others coming up - could be other side effects or maybe the visual problems and confusion are an entirely separate issue to the sickness.
If we had a clear idea of what was wrong and he was getting treatment of course I wouldn't be posting.
Something is being missed .

Thanks again for your ideas, I am really grateful that you have taken the time to help.

thonlassie Sun 04-Jun-17 10:33:37

How rubbish for him, just because something has been already ruled out doesn't mean that isn't the cause, I have a friend who had very similar symptoms and Chrons disease had been ruled out but that is what she had on continued symptoms and retesting.

zen1 Sun 04-Jun-17 10:37:44

Has he had a brain scan as part of the investigations (to investigate the confusion / double vision / dizziness)?

rainbowstardrops Sun 04-Jun-17 10:38:29

I would be making a fuss in the hope they start looking at him more closely.
Has he had any scans at all?

zen1 Sun 04-Jun-17 10:39:35

With the vision, memory loss, confusion coming on, I would go to A&E.

ArgyMargy Sun 04-Jun-17 10:40:41

You could read up on Medically Unexplained Symptoms (MUS). It is a reasonably well researched area.

ArgyMargy Sun 04-Jun-17 10:42:17

Sorry I meant to say read up on the NHS choices site, not Dr Google.

passthewineplz Sun 04-Jun-17 10:49:15

Sounds like it's time for a trip to a&e, he needs to be seen by a specialist.

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