.... To feel sorry for myself and DS

[babbafishbabe]

Got out of hospital now Wednesday ... Had pneumonia. Given 6 days of IV antibiotic ... Not given antibiotic on discharge as they give him diaorreah and then his bottom breaks down. ( he has EDS SO PAPER THIN SKIN) and we need oromorph just to change a nappy. (DS IS 7 next week but severely disabled )
More seizures and just not himself ... Take him to GP Whi says he had ear infection ... Gives oral AntiB's ....

Arrrggghhhhhhh

[LuluJakey1]

Don't know what to say except you must feel so frustrated and exhausted and be hurting for your son.

What is EDS?

[ShesAStar]

No, YANBU! You poor things, it all sounds painful and like you've suffered enough! Hope DS starts to feel better - hope he sleeps well and you can relax a bit

[PaintYourWagon155]

for you. Must be very hard x

[Tomselleckhaskindeyes]

Poor kid.... Poor you..., so sorry that you are going through this? Have you got a care package at home? Sounds like you need support and a lot of it. I hope things get better soon.