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To panic about my skin?

(29 Posts)
Nicebucket Mon 16-Nov-15 22:13:44

I feel like my eyelids are losing pigmentation- they're going White and the White area is very gradually becoming bigger. I've got some random white eyebrow hair as well.

My aunt had vitiligo, so I've kind of jumped the gun and assumed that I have it too given that it can be hereditary.

And it's terrifying me.

I can't sleep or eat. especially because I've been told this has no cure.

Shout out to any doctors or dermatologists or generally knowledgeable people, please tell me what else this could be! Everything online seems to indicate that loss of pigmentation is always vitiligo. I have a severe vitamin D deficiency. Could that be the cause?

Is there anything else that can cause whitening of the skin? Could it be my makeup? I wear eyeshadow everyday.

Nicebucket Mon 16-Nov-15 22:20:31

And people around me aren't helping, they've already started to sympathise and say you poor thing....

ghostyslovesheep Mon 16-Nov-15 22:22:08

go to your GP

RachelZoe Mon 16-Nov-15 22:23:13

You need to stay off google and go to a doctor. Nobody here can give you any real reassurance without seeing your skin up close. Make a GP appointment and go from there. I'm sorry you're feeling so anxious about this flowers

Nicebucket Mon 16-Nov-15 22:29:40

I was afraid of the "go to your GP" responses. I don't have an appointment for the next two weeks, so I'm just looking for more info in the meantime.

Diggum Mon 16-Nov-15 22:33:37

Have a look at tinea versicolor (aka pityriasis versicolor). It's caused by a treatable fungal infection and is my main differential for vitiligo-type patches.

You need to be examined by GP but this might help as a possibility to hold on to in the interim!

Nicebucket Mon 16-Nov-15 22:35:46

That's what I've been holding on to! I'm hoping that's what this is. However, when I read about the subtle differences between vitiligo and the fungal infection, What I have sounded a lot more like vitiligo.

hollinhurst84 Mon 16-Nov-15 22:37:50

I think I have the start of vitiligo. If it helps, mine seems to be on my hand, and it hasn't changed in a year

Nicebucket Mon 16-Nov-15 22:42:33

Holly hurst- did a doctor confirm that's what it was? I've had these eye things for a year or more too, I've just been dismissing them. But they seem a lot whiter now.

Archiesnan Mon 16-Nov-15 22:59:31

Nicebucket why is the thought of vitality so terrifying?

Archiesnan Mon 16-Nov-15 23:01:04

Vitiligo stupid auto correct blush

Wagglebees Mon 16-Nov-15 23:15:32

If it is vitiligo and you want to disguise it, there is really good make up available for skin conditions, scarring and pigmentation issues. Not rubbish orange stuff like it used to be but decent foundations and concealers in different skin tones. Have you see a GP? They can refer you to a derm so you'll have a proper diagnosis. Worrying yourself sick over what ifs and maybes is no good. Stop googling and make an appointment. Once you have a name for it it'll seem a lot less terrifying. flowers

Wagglebees Mon 16-Nov-15 23:16:55

Seen you have a GP appointment, that's good. Meantime all you need to do is stop Googling! Worrying won't help.

Wagglebees Mon 16-Nov-15 23:19:01

Eyeshadow will not cause whitening btw. It's just coloured talc and things that have been vigorously tested as it's going close to your eye.

landrover Mon 16-Nov-15 23:26:53

Even if it is Vitiligo, honestly it is not the end of the world, please don't worry! x

GreenFinnedDemon Mon 16-Nov-15 23:27:39

Ive got vitiligo,so has my Dad and my paternal grandmother had it.
Ive got it around my eyelids too,and hands feets legs and arms. Im quite pale skinned which is good as its not too noticable unless I get atan so I avoid the sun.
It's not too bad OP,its never really bothered me too much.
Id go to your GP just to be sure. There are great camouflage creams available.
The Red Cross do a skin matching service for a small donation and you can get camo cream made up to your skin tone on prescription.
www.redcross.org.uk/What-we-do/Health-and-social-care/Independent-living/Skin-camouflage
Don't panic its not that bad.

hollinhurst84 Tue 17-Nov-15 02:20:59

Yes, seen by doctor. Under investigation for other autoimmune issues but no history of it anywhere in my family. It's on the back of my fingers up to the knuckles, all my freckles have gone. But that's it, it hasn't spread anywhere else

hollinhurst84 Tue 17-Nov-15 02:25:44

Absolute rubbish pic but you can see the line above my knuckles which is sort of where it starts. Just looked at the date on another pic and that was over a year ago and no change

Atenco Tue 17-Nov-15 03:38:48

Supposedly Cuba has a cure for vitiligio, but I think you have to there to get the treatment

BeyondThirty Tue 17-Nov-15 07:56:37

The only thing they siad to be worried about when my ds's was diagnosed was if it starts to spread, not if it becomes more obvious

(Old picture so i can keep an eye on the size, this was just after big bro helpfully cut his hair...)

I have it too, mine becomes more and less obvious depending on the tan around it. It can be related to autoimmune diseases, appears to have a genetic link, but can be caused by skin damage and arrive after psoriasis (which i also have, but hadnt had a patch of where my vitiligo appeared)

Nicebucket Thu 03-Dec-15 16:51:07

Hi all

Went to a skin specialist and was told its "pre vitiligo" sad. I've been given some creams to put on affected areas and also some medicine to take orally.

Not sure exactly what that means, but apparently it's in the very early stages. We know there's no cure for vitiligo, but family have been telling me that because it's in early stages, it can be stopped where it is. My aunt had it and hers went away completely...

I'm not sure what to believe at this point because everything I've read seems to indicate that it's NOT curable.

Also, my GP isn't convinced that it's vitligo- it isn't symmetric on both eyes like vitiligo normally would be and he isn't satisfied that other possibilities have been ruled out (such as allergies, vitamin deficiencies, reactions to products etc.)

I'm quite depressed and I will be seeking a second opinion.

Nicebucket Thu 03-Dec-15 17:01:49

I feel bad moaning about a vanity thing when there are so many more serious problems in the world!

But if anyone's been through something similar, I would really appreciate some emotional support.

I've always had confidence issues- had some weight issues, bad acne etc. just as that's behind me, I've got something else now. I'm a bit discouraged and low.

BeyondThirty Thu 03-Dec-15 17:04:09

I know how you feel about the vanity thing. My health went to shit after pregnancy and my psoriasis flared. It got so bad i lost a lot of hair. The hair bthered me so much more than everything else xx

gleam Thu 03-Dec-15 17:06:03

Nicebucket flowers

Could you see a dietician - through your GP, maybe? - just to make sure you're eating well enough. (As you mention a Vit D deficiency.)

Nicebucket Thu 03-Dec-15 17:12:52

Well, there's good news about the vitamin D- it's still on the lower side, but it's getting better.

And I've already been given some supplements and diet advice, which I've been following diligently.

There's a lovely bloke I like too and he likes me. I'm very nervous about how he'd react when he finds out.

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