Casein allergy? Hives while eating cauliflower cheese

[Sallypoo]

Hi all,

I made cauliflower cheese this morning with goat's milk & cheese for DS. I've been avoiding cows milk as I have an intolerance. He had it for his lunch, and after only 3 spoonfuls his face was covered in hives. Obviously I stopped feeding him immediately, and wiped his face. Hives stayed for a while, but luckily no other reaction. No swelling lips or tongue.

I've done a bit of research since and now realise you don't get hives from an intolerance, only an allergy. So it looks like DS has an allergy.

I was aware yesterday that DS had a runny nose after some soft goats cheese, given as finger food instead of dairylea and that he's had a few loose nappies. Today I used a hard cheese for cauli cheese.... so if sounds like the curds not whey to me...

What now? has anyone else got experience of dealing with this type of allergy?

I need to get some liquid piriton in, and get a GP appointment, and try again for some allergy testing. I was only there on Tuesday pointing out that I thought I should move DS onto soya formula because of his exzema... didn't get a response, just some different cream.

What formula can I use? At the moment we use SMA gold and white. I guess I need to stop using the white? as this is casein based and casein protein doesn't get changed when heated - is this right?

Any advice gratefully received.

[gastronaught]

CHANGE YOUR DOCTOR! as he sounds useless, (from this and your other post) honestly, you need a Doctor who is willing to listen to YOU.

[williamsmummy]

try a allergenic formula, like neocate, or alumentium ( sorry sp?!). a formula with totally changed hyper allergenic formula.

dont give any diary products.....................and ask for a referral to a pead immunoliogist/allergy clinic.
( nearest for most, in london)

good luck.

[Sallypoo]

Hi there,

Thanks all. Would you beleive the GP is the only 'baby' doc at the surgery! She's been OK, but didn't spot DS tongue-tie either, so I'm not too impressed. I went in to see her for several tings including a rash I've had on my leg for 6 months, and she said "no idea what that is - try some of the chream I prescribed for DS"!!!!

Hay ho - I know she means well, but I does seem like you have to have a serious reactino before u can get any type of referal nowadays. Certainly not trying the home testing as suggested by that other GP! Not with a husband who's already has anathalatic (?) shock!

I'll keep you posted.
thanks
Sallyp**

[JuneBugJen]

dont forget about could it be the cauli.

I'm allergic to apples, pears, oranges, raw peas (!) and peppers as well as nuts, eggs etc. And I'm tlking about real allergy with closing over windpipe etc. It seems barking to be allergic to veggies, but it is poss.

[InvisiblePsychomumVowelThief]

It could still be the protein in the goats milk that is causing the reaction.

I am allergic (very, in the same way as junebug) to cows milk, and mine is the protien in it. I cannot touch goats milk......my consultant told me that with a reaction like mine to cows milk, goats milk is way to similar to try IYGWIM.

I agree that your doc sounds very slapdash in her doctoring skills. and as for the comment about using your DS's cream on YOUR rash.......we are constantly being told not to share prescriptions!

sounds to me as tho you either need to go to another doc to ask for a referral to allergy testing, or feed him the same again and go straight to A&E with the reaction (which is how we got the referral for one of mine! altho TBF, my doc was great and we had no idea about the allergy at the point of feeding DD3 nuts!!)

junebug......quick Q regarding your aple and pear allergy. I too am allergic to 'tree-fruits' (as my consultant calls them), but apparently it is very very rare to react as I do (allergic shock the last time, now have an epipen). how did you discover yours, and have you had raised eyebrows for it (I have!). no-one that I knows believes me to start with........argh.

[JuneBugJen]

have a look at a condition of 'Oral Allergy Syndrome' IPMVT online.

It does exist (its not just a made up 'Iget a bit windy after eating bread' bizzare condtion).
It was like a revalation to see the list of things related to tree fruits, like latex etc. Strangely, you can still eat 'tree fruits' once cooked as it denatures the protein (unlike nuts etc)
My dh (who is nearly a surgical consultant) found it. My GP had never heard and had my IgG tested for some of the worst ones. They all came up as strongly allergic.

[JuneBugJen]

KWYM about people raising an eyebrow!

But perhaps they should come and see us poor sods trying to negotiate a menu at a restaurant!

[InvisiblePsychomumVowelThief]

oh god yes I have the 'fun' of restaurant ordering.....also not helped by milk allergies !

I will go hunt down oral alleregy......I have heard of it (consultant mentioned it to start with until he had a letter from my doc about the allergic shock and the symtoms I still displayed the day after.....heart rate went bonkers!).

does cooked really make that much difference??? I was told that, but TBH, I had such a reaction to a smoothie and then a fruit sala (obviously both raw fruits), that I have been too terrified since them to even try anything containing apples and pears......cooked or otherwise.

I miss apple pie.

assuming you have tried and no ill effects????

[JuneBugJen]

For me... smoothies bring me out in hives, but apple sauce, no probs!
Same with raw peas. Mouth will 'itch' for hours, never had a prob with cooked.
Poor you tho'. Try a bit of apple sauce perhaps in the docs surgery if you really want to see if ok.

I miss avocado...sob! That is no good raw or cooked.

(sorry sally for hijacking thread!)

[Sallypoo]

Hi there,

Well breakfast hasn't gone so well. Because of yesterdays reaction to the cauli cheese, I didn't give DS his normal yoghurt on toast this morning.

I substituted the yoghurt for butolli olive spread - says only whey on the ingrediants list. He didn't like it so I tried some mash banana and a pot of Boots fruit puree.

Low and behold he started getting hives.... not sure what to, but I'm guessing the spread, as he had hives on his arms where the toast had got squashed onto them - the other food didn't get that messy.

Looks like a phonecall first thing monday to the GP for an appointment

[Sallypoo]

Agree that I need to double check the cauli.... Do you think putting a little bit on his arm and waiting to see if he gets a hive is too risky?

[JuneBugJen]

oh, not sure.
Best speak to GP.

Hope your wee one is ok soon, its horrible to see them suffering.

[Sallypoo]

Hi all,

Will be calling GP on Monday. Prob get appoint Tuesday - seems all baby apointment are on a tuesday....

Anyway, we've had hives Fri, Sat & Sun. It seems that a switch has been flicked and now all sorts of things are setting them off, so I want to get some Antihistamine today so I have it on standby.

Can anyone recommend one that I can have just as a back up until I see the doctor early next week?

I was going to get liquid Piriton, as I find this is the only Antihistamine that works for me, but it appears to be for over 1's and DS is only 7 months old.

Thanks
Sallyp**

[DeborahOBE]

Hi there,
I also have a seven month old daughter who seems to have suddenly become allergic to everything. We started weaning her at 6 months and straight away she had reactions. It started with reactions to banana, pear, peach, apple and mango which consisted of hives around her mouth, then speading all over her body. At it's worst she became wheezy and struggled to breath. We were really fortunate and got referred really quickly to an allergy specialist who has prescribed her an anti histamine and an epi pen. Since then she's also had allergic reactions to egg and tomatoes.
I just wanted to say I sympathise with you and hope your GP cooperates. I took in photos of my daughter's reaction and when she saw them she suddenly took me seriously.
The pharmacy wouldn't let me have any piriton and the GP wouldn't prescribe it either. I had to wait to get it from the specialist but I just stopped weaning until then.
I have a feeling we have a long road ahead of us :-(
Deborah

[barnsleybelle]

Hi, My dd was diagnosed with cows milk protein allergy at 5 months.

My gp and hv were hopeless so i insisted on a referral to the paed.
He just took one look at her and said what is was. He prescribed neocate milk which i introduced gradually, and started a dairy free diet immediately with support from the dietician.
Within a few weeks her skin and vomiting were better.
She's also allergic to soya which makes it even harder, but we can start ti introduce this when she is 1.

It's a pain to start with as you have to scrutinise all labels and it's surprising what they can't have, but we are used to it now (she's 11 months).

On the plus side, because of all the restrictions she gets stacks and stacks of fruit and veg!!

[clarence1972]

My twin girls were diagnosed with peanut, almond and egg allergies at 7 months and have been prescribed piriton since then at a dose of 2.5 ml 2x daily so it should be fine. hope you find out soon what is causing the reaction.

Interested to see the thing about oral allergy syndrome as 1 of my girls is allergic to peaches and I suspect ripe pears (didnt react to skin prick but I dont think it was ripe enough as she only had a reaction at home when it was very ripe????).... the allergy nurse tested her for tree pollens (was fine) as she said it was linked and common in adults but not in children and babies.

[oi]

mine also went through a phase of looking like they were allergic to absolutely everything. One allergy seemed to trigger off a whole load of others, or it seemed to make her gut very sensitive so then she reacted to others.

Once we found out what her 'true' allegies were (via a blood test at hospital then skin prick and food test - milk, egg and soya), we stopped weaning, cut everything and started again.

It was at a similar age I think too (just can't remember details as mine are so much older now!).

[heliotrope]

About the piriton - it isn't licensed for under ones, just because it hasn't been tested, so pharmacists won't sell it, but doctors at our hospital do prescribe it for babies and I've given it to my son from 6-12 months. So I personally would go to a different pharmacy and say it it for an older baby if they ask you. It is meant to make them drowsy but that doesn't really matter for a baby. I used it to try to control eczema itching but it wasn't that good for this - I like to have a bottle in the house though in case of food allergies suddently cropping up.