Children with both milk and soya allergies

[mintyneb]

Those of you with DC who are allergic to both milk and soya, do their reactions differ depending on which product they ate?

11 yo DD is severely allergic to milk and carries an epipen. If she were to eat anything containing milk she would have classic anaphylactic type symptoms starting with swollen lips and tingling mouth.

She has always been fine with soya though and I know this is lucky as a lot of people are allergic to both. However, due to another health condition she has to have a high calorie diet and spends the week filling herself with bought free from cakes and treats during the day in addition to all her regular meals.

In the last few weeks she's started to get tummy aches particularly at the weekend and needs to keep going to the loo.

I'm starting to wonder if she is now becoming allergic to soya. But is it possible to have an anaphylactic reaction to milk but more of a digestive reaction to soya?

[NowApparently]

It's completely possible to have two different reactions types to two different allergens. Can you try excluding soya then reintroducing to test for a reaction?

[mintyneb]

Thanks for replying. It's a bit of a tricky one, her weight gain is so poor we're already threat of a gastrostomy for overnight feeding so removing a food group she is so reliant on would be disastrous.

But... if she is allergic to soya then continuing to give it to her every day is not going to do her any good either.

We have a hospital appt on Friday so it's possible the consultant will want to do a RAST test to kick things off

[Mrsmomo]

Hi, my wee girl has milk allergy, fine with soya, but dairy free chocolate would give her tummy cramps and diarrhoea, think its the sweetener. Any brand of dairy free choc will do it. Maybe try keeping an eye in which sweetener is in the foods she is substituting?

[Jugglejuggledododoooo]

My DD (18 months) is allergic to both dairy and soya. I think if you can find some alternatives that are soya free to get into your DD it would help work out the Soya question. We use organix biscuits as treats for her - their ginger ones and banana ones are dairy and soya free.

I’d also start pushing hard for a referral to the dieticians and potentially immunology, especially given the weight gain difficulties you describe

[Jugglejuggledododoooo]

Sorry - just saw that you already have the referral. Good luck!

[Itscurtainsforyou]

We tried oatly foamable milk/cream/custard when ours couldn't have dairy/soya - worth a try?

[triballeader]

My youngest son has a severe allergy to milk & coconut [epipen] as well as being severely intolerant to eggs, fish, nuts, legume seeds & peanuts.

In all honesty I would be suspicious of the bought ready made cakes and treats and take a good hard look at the sweetners that they use. Many of the hypo-allergy free from sweets, treats and snacks have started to reduce sugars and replace with sweetners. In turn over time they can cause the problems you have been encountering.

Artifical sweetners make my lad sick- possibly because his digestive tract is as reactive as heck- so I mostly just cook a huge batch of treats from a good vegan cook-book. I just tweak the nuts and legumme oils for pure rapeseed or olive oil and miss out any nuts. My youngest daughter is still on a very high calorie diet years on [under the 0.4th] thankfully she can eat milk products.

IF it would help I am happy to bounce how to make high calorie recipe ideas milk free from ideas with you. I have to cater for both in two seperate kids.

[mintyneb]

Sorry tribal I've only just seen your post.

Things have moved on and we now think DD is intolerant/allergic to fish. She used to get lots of tummy aches on a Saturday (Friday of course being fish and chips at school and sometimes home) but we put this down to a change in morning routine etc.

Recently the crippling stomach aches, running to the loo and feeling sick have got worse and moved to a Friday evening instead. 2 weeks ago she had them at after school club too so the penny finally dropped!

Looking back, she has had the odd occasion where she has been sick after eating fish fingers but it was so random (and often there could have been other triggers) that we never made the connection.

But as to your offer of sharing recipes for high calorie snacks I would be very interested