Does anyone know the best paediatric gastroenterology department for diagnosing coeliac children in London or the surrounding area? Or the name of a good paediatric gastroenterologist to do a biopsy to diagnose coeliac? We have private health care cover, and would travel to find the right person if necessary. We're just looking for the right person to be referred to.
It looks like ds may be a particularly difficult case to diagnose, which is why we think we may need to see a coeliac expert, rather than the local paediatric gastroenterologist. Apparently you need to be a coeliac specialist to read the lab results in cases which are less than straightforward.
Ds is nearly 13, and has had coeliac symptoms for over a year. His father and paternal uncle are coeliac. He had had two sets of blood tests, which were both negative, but another showed that he has the coeliac gene.
He is missing a lot of school, largely because we can't restrict his gluten intake too much when he is still due to have a biopsy or more tests.
I think we need to find a coeliac expert to do the biopsy and then interpret the results of all the tests so far. From what we've read, they also need to be based in a fully equipped gastroenterology dept which can cope with this kind of case.
Any other advice, insights, or opinions would also be welcome!
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Anyone know a good paediatric gastroenterologist to diagnose a coeliac child?
33 replies
Fauve · 20/01/2007 10:42
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