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Self Injecting B12

(21 Posts)
MaryBoBary Tue 11-Aug-20 12:52:03

Is there anyone here who already self injects b12 and can give me a link for where to buy it please? I am getting desperate now but can only seem to find tablets or patches online.

OP’s posts: |
Fatherbrownsbicycle Tue 11-Aug-20 14:40:48

Most people get them from Germany it’s discussed on here a lot, I can’t see newer posts without joining which I don’t want to do.

healthunlocked.com/pasoc/posts/137257352/link-to-german-company-that-supplies-hydroxocobalamin-injections

healthunlocked.com/pasoc/posts/138318431/where-can-i-buy-b12-injections-in-the-uk-i’m-struggling-to-understand-the-german-websites

MaryBoBary Tue 11-Aug-20 15:54:34

Thank you, I didn't want to sign up for an account on that website either but you've managed to find enough info smile

OP’s posts: |
Fatherbrownsbicycle Tue 11-Aug-20 16:07:36

It’s awful so many people can’t have injections at the moment. I’m lucky my surgery let me have the prescription because I have a family member who is a nurse and will inject me.
Good luck!

blindmansbluff Tue 11-Aug-20 16:10:27

My Dad couldn't get his injections so he ordered some drops off Amazon that go under the tongue and you take them every day. He says now he'd never go back to the injection as the drops work better plus there's no crazy up the week after and the down the week before. They were about £25 for a 6 month supply.

LillianBland Tue 11-Aug-20 16:14:34

My child has a friend whose dad prescribes all his menopause patients regular B12 injections. Lucky women. I’m so jealous. Are they safe to self prescribe?

picklemewalnuts Tue 11-Aug-20 16:27:13

How do you know if you need them? Are the blood tests done by the GP testing the right strength? I know that thyroid function isn't treated in the U.K. until it's worse than in other countries.

Sorry that's muddled. Hopefully someone will know what I mean! My last blood test didn't raise a B12 issue.

Girlonatubetrain2 Tue 11-Aug-20 16:33:40

@blindmansbluff pls could you find out the link for me?

AnneLovesGilbert Tue 11-Aug-20 16:45:21

I self inject.

B12 vials:

www.versandapo.de/vitamin-b12-depot-rotexmedica-injektionsloesung-100x1ml-pzn-03862305 Pop this into chrome and you can translate to English.

Needles:

www.exchangesupplies.org/shopdisp_12_week_cycle_kit.php

Draw up with the bigger one, inject using the smaller. I do it in my thigh. There are some good YouTube videos for tips and the B12 Facebook groups have useful pointers too.

HerRoyalNotness Tue 11-Aug-20 16:54:48

blindmansbluff

My Dad couldn't get his injections so he ordered some drops off Amazon that go under the tongue and you take them every day. He says now he'd never go back to the injection as the drops work better plus there's no crazy up the week after and the down the week before. They were about £25 for a 6 month supply.

I’d love to know the one he takes too. My dr stopped my injections even though I can’t absorb b12 for some reason. I’m on multi v and patches but they don’t really help. Would like to try this method

blindmansbluff Tue 11-Aug-20 16:56:34

@Girlonatubetrain2

They're away in the caravan with patchy signal but I've just had a quick look on Amazon and there are several in varying strengths to choose from. He's honestly like a different person after switching to these drops

picklemewalnuts Tue 11-Aug-20 16:58:33

It would be good to know exactly- some of them have very mixed reviews, and seem a bit unreliable.

blindmansbluff Tue 11-Aug-20 16:59:55

@HerRoyalNotness

My Dad can't absorb through the gut either after stomach cancer which is why he was on the injection but he gets on with the drops much better and his mood is now stable. I'm not sure exactly what strength he uses but put b12 drops into Amazon and there's a few to choose from

blindmansbluff Tue 11-Aug-20 17:07:54

Right, it's this one www.amazon.co.uk/Bioactive-METHYLCOBALAMIN-ADENOSYLCOBALAMIN-Coenzyme-Supplement/dp/B07H31BFRB/ref=mp_s_a_1_1?dchild=1&keywords=Bioactive+Liquid+Vitamin+B12+Methylcobalamin+Plus+Adenosylcobalamin+%2850ml%29+2%2C400+mcg+%28High+Strength%29+Vegan+Energy+%26+Sleep+Sublingual+Drops+%28comparable+to+injections%29+in+Pure+Water+%28Made+in+The+UK%29&tag=mumsnetforu03-21&qid=1597162017&sr=8-1

MaryBoBary Tue 11-Aug-20 20:27:47

@picklemewalnuts B12 isn't tested for in routine blood tests so you have to ask for it to be checked. In the UK I think the acceptable limits are anywhere from about 180 - 900, but in Japan you are classed as deficient if you are under 1000 which I think is interesting. I had to have injections from GP before as I was deficient and had all the classic symptoms. I have them again now and although Dr has said my levels are currently OK at 250, I'm not happy with that. I've been taking 1000mcg tablets for 12 months and no improvement so I'm going to start self injecting. You can't overdose and it is water soluble so I think I have nothing to lose. I can't carry on sleeping for 11-12 hours per day and still being exhausted, and Dr isn't willing to investigate further. I also take medication for depression and anxiety which I would like to cut out, and think higher B12 levels may help me do this. It feels a bit surreal to be ordering needles and self injecting but honestly I'll try anything now just to feel my age (30) and not like an 80 year old!

Thank you for the advice and links! I've ordered some and feel a strange sense of pride in myself for taking my responsibility for my own body and wellbeing and not replying on someone else to tell me how I feel.

OP’s posts: |
MaryBoBary Tue 11-Aug-20 20:29:56

Oh, and also the standard NHS B12 test doesn't differentiate between active and inactive B12, so you levels could come back within the acceptable limits but be 80% inactive. I feel quite strongly that B12 deficiency is mot taken seriously enough by some doctors and I feel that a lot of people are suffering needlessly.

OP’s posts: |
Mumfymum Tue 11-Aug-20 20:58:11

I had my B12 jab last week. My GP surgery stopped doing them at the start of lockdown and I got a prescription for the tablets (then found out I could have got the same tablets for £3 off Amazon ). They were only 50 micrograms twice a day. They had zero effect.
So I rang the doctors last week on the off-chance they were doing injections again - and they were. Had it done in a tent outside the doctors surgery. I can now stay awake for a full day, my joints no longer hurt and no mouth ulcers

picklemewalnuts Tue 11-Aug-20 21:04:21

Thank you Mary. I'll try the drops. I've had fairly thorough blood tests- went private for a fibromyalgia diagnosis. I'd think he'd have checked.

That said, I'll try anything. I ache and have no energy. I've started collagen and b patches. You never know.

HerRoyalNotness Tue 11-Aug-20 21:35:13

blindmansbluff

*@HerRoyalNotness*

My Dad can't absorb through the gut either after stomach cancer which is why he was on the injection but he gets on with the drops much better and his mood is now stable. I'm not sure exactly what strength he uses but put b12 drops into Amazon and there's a few to choose from

Thanks so much. I think mine is related to rheumatoid arthritis but I can’t be sure as they don’t seem to care about the cause

CCSS15 Tue 11-Aug-20 23:10:34

Hi, i have 12 weekly injections from GP and luckily they continued doing them through lockdown but its not frequent enough so I give myself top ups. Got the B12 from German amazon - took about a week to arrive - you can translate the site into English so you can see what you are doing. Get needles etc from the same place as pp and they sell a b12 kit

superstar63 Wed 12-Aug-20 09:53:26

blindmansbluff - Thank you for the link and I have ordered some and they arrive today. Am always tired, no energy and dont sleep well so going to try them as the reviews are really good.

Will update soon!

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