Hi, my son is now 5 years of age. When he was one started noticing he was in so much pain opening his bowels, he would go longer than a week!! I told all docs he was under it wasnt normal constapation due to the amount of meds he was on and how much pain he was in. Finally after serval admissions in arrowe park and alder hey for poo to be removed, took them 4 long painful years to finally diagnose riley with a thickened muscle in his bum, after me pushing for tests for years. He has botox injections oct 2018, which later on seen his surgeron and has stopped it because hasnt worked for him. He now has to have an emena every 3 days which i have to do at home its so hard and emontional for him, i dont like the restrainig but he needs it. His also has to attend bladder training in urogly because he was left so constapiated for so long. Im annoyed and exshauted never mind how my son feels. Was wondering if anyone knows if he would be able to get DLA? Have to change him loads in the day time and even in the night, as well as hold my child down and put medication up his bottom every 3 days :( he also has contince pads prescirbed by his nurse butin all fairness thats more for protection from overflow. Hes scared to use the toilet terrified, so he does his bissuness in a nappy still. Long road and so tired of it all
Anyone been through anything similar?
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The long story behind my sons constapation.
10 replies
Rilry2311 · 21/02/2019 17:38
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