Recurrent Miscarriage Support Thread 21 - tests, treatment, trying again.

[Justonemoretime]

Buckle up, the threads move like lightening! Tea, sympathy, information, support and combined wisdom to guide you through the maze of testing and treatment for recurrent miscarriage. Newbies always most welcome.

Please start with the traditional recap of your stats.

Hi. Marking place with very quick stats

Me 41, DH 42
3 miscarriages in 2010 at 10, 6 and 8 weeks
Then tests at St Mary's all normal, DD born Jan 12
Then 2 more miscarriages in end of 2013 and start of 2014
Went to Coventry. All normal again...
But following the scratch and the progesterone + clexane protocol I have now a week old DD2 in my arms

Pompoms for Coventry

Here to hope to continue to support you brave bunch of women, but might not be around as much

Lifted from thread 20 (where it was lifted from thread 19)

andcounting, 33, ds, 5 mcs, pg
bakingtins, 40, 2 ds, 4 mcs, 1 dd smile
barkingtreefrog, 35, ttc #1 since Dec '11, 2 mcs
bettybutterchops, 40, ds, 3 mcs, pg
bootles, 41, ds, 5 mcs
brummiegirl15, 38, ttc #1 since April '14, 3 mcs
bythesea82, 32, ttc #1 since Dec '12, 3 mcs, pg
cloudjumper, 43, ds, 3 mcs
flen, 36, ttc #1, 3 mcs
floweroct 34, ttc #1 since summer '11, 3 mcs
flower29, 29, ds, 2 mcs
frecklefire, 40, ds, 3 mcs
girliesaints, 37, dd, 3 mcs
mimidoddrioni, 35, ttc #1, 2 mcs
Ifinishedthebiscuits, 37, 2 ds, 4 mcs
jady77, 37, ttc #1 since Sept '14, 2 mcs
justonemoretime, 39, ttc #1 since '11, 3 mcs, pg
longestlurkerever, 34, dd, 3 mcs, pg
loopyaboutmy2boys 38, 2 ds, 4 mcs
marchgirl, 37, dd, 4 mcs
maverick79, 35, ttc #1, 2 mcs
minnie74, 40, ds, 3 mcs
monten, 37, ttc #1 since April '13, 1 TFMR, 1 mc
mrsconfusion 35, dd, 3 mcs
mrsdiddlydoo, 34, ds, 2 mcs
sebsmummy, 40, ds, 3 mcs
sizethree, 35, ttc #1, 3 mcs, pg
sunandrainbow, 38, ttc #1, 4 mcs
tannyloo, 42, 2 ds, 5 mcs, 1 ds smile
thepopandcry, 38, ds, 4 mc
tinytear, 41, dd, 5 mcs, pg

catlover2014
boozle80
twilightstruggle
cloudjumper
queenangst
enlightenedbunny
leahjane
lovemylittlebear
seekingmiracles

Marking my place, thanks for the new thread, just - how are you doing? Will you be going back to work next week?

Me 43, DH 45, DS (nearly 4), ttc no. 2 since August 2012
3 mcs in 2013, all discovered around 8-10 weeks, had ERPC, natural and medical management, respectively
2nd trimester mc in 2014, discovered at 17 weeks.
Mc 3 & 4 caused by chromosomal abnormalities (trisomy 2 and 18), all other tests fine. Currently waiting MRI results of my big fibroid (seeing the consultant tomorrow).

Currently having a 'low', thinking I might have to come to terms with the fact that DC2 is not going to happen for me. Given myself a deadline of August this year, then will re-evaluate if I can/want to keep going, or if DS will remain an only child. I wish I could 'do' Coventry, but I really don't think that I can justify it, given that my mcs have been caused by the chromosomal issues (well, the ones we know about). Donor IVF or adoption are not an option, DH really isn't keen.

pop Picking up from your remark on the previous thread - I don't think that we will ever wake up and just know that that's it with ttc, I think coming to that decision is a very gradual (and painful) process...

brummie Good on you for applying for that job! Life must go on, in spite of everything. I've given up on planning around possible pregnancies, I reckon, if I do fall pg, I will deal with it there and then, until then, I am booking holidays, make plans and do stuff. Life's too short!

Slight adjustment of my entry :

andcounting, 33, ds, 5 mcs, pg
bakingtins, 40, 2 ds, 4 mcs, 1 dd smile
barkingtreefrog, 35, ttc #1 since Dec '11, 2 mcs
bettybutterchops, 40, ds, 3 mcs, pg
bootles, 41, ds, 5 mcs
brummiegirl15, 38, ttc #1 since April '14, 3 mcs
bythesea82, 32, ttc #1 since Dec '12, 3 mcs, pg
cloudjumper, 43, ds, 4 mcs
flen, 36, ttc #1, 3 mcs
floweroct 34, ttc #1 since summer '11, 3 mcs
flower29, 29, ds, 2 mcs
frecklefire, 40, ds, 3 mcs
girliesaints, 37, dd, 3 mcs
mimidoddrioni, 35, ttc #1, 2 mcs
Ifinishedthebiscuits, 37, 2 ds, 4 mcs
jady77, 37, ttc #1 since Sept '14, 2 mcs
justonemoretime, 39, ttc #1 since '11, 3 mcs, pg
longestlurkerever, 34, dd, 3 mcs, pg
loopyaboutmy2boys 38, 2 ds, 4 mcs
marchgirl, 37, dd, 4 mcs
maverick79, 35, ttc #1, 2 mcs
minnie74, 40, ds, 3 mcs
monten, 37, ttc #1 since April '13, 1 TFMR, 1 mc
mrsconfusion 35, dd, 3 mcs
mrsdiddlydoo, 34, ds, 2 mcs
sebsmummy, 40, ds, 3 mcs
sizethree, 35, ttc #1, 3 mcs, pg
sunandrainbow, 38, ttc #1, 4 mcs
tannyloo, 42, 2 ds, 5 mcs, 1 ds smile
thepopandcry, 38, ds, 4 mc
tinytear, 41, dd, 5 mcs, pg

catlover2014
boozle80
twilightstruggle
queenangst
enlightenedbunny
leahjane
lovemylittlebear
seekingmiracles

My stats:
3x mmcs, #1 and #2 at 6 and a half weeks, both discovered on scans following spotting. This was Nov '11 and May '12. Then some local tests, all clear. Prescribed 400mg progesterone from bfp and baby aspirin 'just in case', investigations for thin lining following repeat ERPCs and complications from MMC#2, which needed a course of HRT to 're-set' my cycle, which had pretty much shut down after a couple of issues with retained products after unsuccessful ERPCs.
Then conceived #3 and got past danger point, saw a good scan at 9.1 weeks only to discover mmc#3 at routine 13 week scan. Turned out baby had Turner Syndrome after genetic testing. That was June '13.
RMC testing at St Mary's, London all clear, but uterine septum removed October '13.
After no joy for 3 months, went for uNK testing at Coventry, all normal there, too, well, thin lining and 'lower end of normal', but normal uNK cells.
Took another 7 months to conceive again and was prescribed the protocol I'm on 400mg progesterone twice daily (from bfp - was originally 200mg twice daily, but increased due to some light spotting) and daily heparin injections which I started at 5.5 weeks after 'location' scan.
Now 29 weeks pregnant. I'm off both the heparin (stopped at 13 weeks) and progesterone (weaned down and finally stopped at the beginning of 15 weeks).
The baby is fine, however this pregnancy has been classified 'high risk' because the placenta had grown over my cervix (seen at 20 week scan). It has now moved, but for the last fortnight I've been experiencing heavy bleeds and have been hospitalised twice for 48 hours at a time. Hopefully this won't a) continue for the next 11 weeks or b) cause a problem for the baby that requires an early c-section. It doesn't seem to be early labour, and they're still not sure what's causing it. So we're looking at a re-scan at 32 weeks to keep an eye on things (although I was scanned twice in hospital over the weekend). So taking it as easy as possible now, and making decisions about whether or not it is safe for me to go back to work for a few more weeks. I've had 3 lots of Anti D for my RH -ive status and two lots of steroids for the baby in case it does need to be delivered early.
I'm 39 and DH is 37. We have no DC, and have been trying to start a family for over 3.5 years.

Waves to everyone.

Hi Cloud, thanks. It's partly whether I can stay out of hospital and partly whether work will be prepared to have me back under these circumstances. Medically, I can work, but, having a big bleed at work (as a Secondary school teacher) would cause a logistical nightmare (as well as being highly embarrassing and probably upsetting for the kids). I'll go in on Monday and have a meeting and see what we can agree. I'm still spotting, so who knows whether I'll be hospitalised again before Monday at this rate.

Sorry you're feeling low, but it sounds like you are getting your head round a plan. I hope that mother nature comes through for you before you get to your August deadline. x

Morning all.

Me 38, DH 42
1st MMC May 2011 - 5/6 weeks, miscarried at 9 weeks
DS May 2012
2nd MMC Feb 2014 - 5/6 weeks, miscarried at 7 weeks
3rd MMC June 2014 - 5/6 weeks, miscarried at 12 weeks
Rcm tests @ Leeds all negative, prescribed HCG from next bfp
4th MMC February 2015 - 17/18 weeks, induced labour at 20 weeks. Low PAPP-A hormone found from 13 week combined blood test. Put on aspirin (but that was clearly too late). Not sure if HCG helped or hindered things.

Who knows what this thread will bring. Some good newses hopefully.

flen your blog is simply excellent. I am going to force my dh to read it! x

Hello. Thanks for the thread just. My stats are me 34, dh 35. Dd born Aug 11. Ttc since March 13. Chm pg and 2 x mmc of early gestation. Tests at St Mary's normal apart from pcos diagnosis. Took agnus castus and conceived first cycle. Progesterone and extra folic acid from 8 weeks when nhs dr took a different view to mr rai, who I saw privately. Now 32 weeks pregnant. All good apart from gestational diabetes. Feeling better on liw fi diet and am wondering if it would have helped with pcos when ttc

Doh. Totally missed that first link. Thanks for the new thread.
Me 37 dh 44. Dd born aug 12. Normal pg
4 mc in 13 months (2 of them mmc). All measured 6 weeks or less, although the third definitely made it to 7+1 as we saw the hb. Also suspect no 1 made it further but was reabsorbed.
tried to get foetus 3 tested but they couldn't culture the cells so no result.
Rmc testing inc karyotyping all normal.
Last pg was on progesterone from 7dpo but it didn't help.
Booked in for Coventry next Monday at 315. Eep! Have also joined the RESPONSE trial so depending on Coventry results will either follow their protocol if high nk or the response trial protocol if normal nk.
Thread 21. Wow. Really hoping this one is a lucky thread for all of us

Me 38, 2 X mmc and I complete molar pregnancy

Basic tests clear, now 35+ week with baby boy

Sorry to see so many of you having a shit time at the moment. I'm mostly just lurking and trying to keep on top of my anxiety

It's just taken me ages to find you! I've been looking for days :). Will read back and catch up but hope everyone's doing ok?

My stats:
Me 35, DH 34.
Ttc #1 since December 2011
'unexplained infertility '
6 x clomid got one bfp - then mc, and 5 failures.
2 x iui got one bfp - then mc, and one failed cycle.
1 x ivf failed.
Rmc diagnosed factor V leiden thrombophilia, if I get a bfp I'll be on mild heparin injections from bfp onwards.
Currently still reeling from the ivf failure having had a perfect blastocyst transferred and a beautifully perfect womb lining. Everything went perfectly but it still failed.
Have a frozen cycle to try in June. Before then looking at getting nk cells tested to see if I have an implantation problem due to immune issues. The stinking cold I had from et onwards could apparently be an indicator of this.

Thanks for new thread Just

Me 38, DP 45 been ttc'ing since April 14 - no dc's
Mc 1 at 5 weeks in May 14
Mc 2 at 8.5 weeks in August 14 ERPC
Mc 3 at 9 weeks January 15 after seeing heartbeat at 7 weeks. ERPC. Took baby aspirin for that one, didn't work.

Have seen my consultant Mr Watts at Worcester and all tests have come back clear. Have hystereoscopy booked for Monday 20th April with my pre-op assessment this Friday. Mr Watts said I would require progesterone and heparin next time round

Have also been to Coventry and met with Prof B. Prescribed 200mg of progesterone twice daily from day 17 for me due to shorter cycles (although I see some of you are 400mg???). Was also told I would require heparin.

Prof B was a little concerned at the thickness of my lining as it was only 6mm and would normally suggest a 2nd scratch but as my hysteroscopy will irritate lining anyway he felt it may not be necessary.

Hopefully after op though, in cycle starting beginning of May we will be ready to go again....

Have now applied for a new job because as Flens truly excellent blog has just taught me - I have to try and fight against the helplessness.

I still cannot believe the incredible support on this thread, I genuinely do not think I would cope without you all. I feel we are sharing each other's pain. I was heartbroken for Monten and Barking yesterday and I feel so humble and privileged that you all feel you can share such private thoughts.

Monten interestingly I had my own insight today into why they all behaved the way they did on that thread.

I was talking to pg colleague about my friend whose wife has just had a baby but was quite poorly and got sent from Women's to Birmingham Children's Hospital. Little one is fine now and went home yesterday but his bed neighbour in the next cot was a 6 month old girl who sadly had been shaken by her scum of earth mothers boyfriend and sadly died.

Anyway preggo colleague overreacted totally by practically putting hands over her ears and saying you can't tell me stuff like that, I don't want to hear it, I can't hear it. I'm really careful what I say around you etc etc.

I mean this story is in the press and on the local news so it's hardly hidden. Plus it's something that some horrendous person has inflicted on a poor child. They are evil - but it's not something that's happened to an unborn baby

Anyway she got really defensive and really overreacted.

And basically made me realise that actually they don't want to hear anyone else's bad stories because it threatens their perfect bubble. She even said to me she finds it hard talking to me because I'm a reminder of "what might happen" - she must have also seen the look on my face as she hastily said "but I'm sure it's much more worse for you"

Yeah fuck off

So Monten my lovely, they were never going to take your feelings into consideration. So fuck em basically

Apologies for bad language

Colleagues are talking about going my pregnant colleague going into labour and laughing about her having Braxton hicks. Stupid vile colleague that I can't stand is asking what colour it is, how does it feel blah blah blah

Really want to pipe up, yeah I wouldn't know what that feels like because hey I've already gone past two due dates.

So actually I'd really like to know what that feels like. I'd be really grateful to know about Braxton hicks and how they feel.

But hey it's ok for them to talk about that in front of me, but it so wouldn't be the done thing for me to say that....

Fuckers - the lot of them

Thanks for the new thread just

Me29 dh32
DS born aug13 straight forward pg, no problems
Mmc1 - sep14 just under 12 wks but baby only measured 8+5, had medical management
Mmc2 - jan15 natural mc following spotting at 7-8 wks but sac only measured 4.5wks (no fetal pole/yolk)

Have been badgering gp to do basic blood tests and APS and thyroid have come back normal, still awaiting thrombophillia results.

Booked into coventry on Monday at 1.45! Eeek! Really looking forward to it and hope it's the start of a new and happy phase in my life.

It's very sad reading everyone's stats but there are also lots of babies on the way which also gives me hope for all of us on here. Hope we all get there in the end.

and to all of those feeling shitty and low at the moment. X

brummie I think you are spot on. It's the only way I can rationalise that behaviour. It was like, something really bad happened to me, it didn't happen to you, and yet you're the one flouncing off, saying I have offended you? People behave like that when they're frightened.

I'm sorry your colleagues are being so insensitive. I've realised people just don't think. They just don't hold it in their mind like we do. Even dp doesn't understand how it dominates every waking thought. I suspect they haven't even put two and two together about how that must be upsetting for you to listen to. Can you remove yourself from that situation? Fuck em

Afternoon,
Thank you for the new thread just

Me 32, DH 31
No DC, TTC since Dec 12.
MC 1, 8+6 Nov 13, MC2, 10+6 Mar 14, MC3 10+6 Sep 14.
All testing clear, last MC chromosomally abnormal. Currently 14 weeks pregnant, no additional treatment.

flen as ever, brilliant blog and eloquently sums up what was for me, one of the worst things about recurrent miscarriage - helplessness, lack of control. barking your post really resonated, giving so much up for something you can't control and don't know how long you'll be giving up for. I am absolutely 100% aware of how lucky I am that 4th time pregnant, it seem to have stuck. My 2 years was hard, but nothing really compared to what some on this thread have gone through. I know others said it but posts over the last few days have been so inspiring, people are so strong. In amongst all that uncertainty, pain and sacrifice, there is still a little space for chicken hairstyles and trousers.

Thinking of everyone having a tough time now and wishing I could send some extra strength to everyone.

Just wanted to say monton I am so sorry those people upset you, your post was very moving and I agree, we absolutely can't know what we would do until we get there ourselves.

and to all.

Brummie sorry about the insensitive colleagues, tell them all to go jump .

Flen lovely blog post, as always. I don't think I'm quite at that lying down and accepting the pain stage yet, there's still a tiny glimmer of hope in me...
I'm wondering whether to carry on with the acupuncture given we won't do the frozen cycle until June at the earliest. Part of me thinks that stopping will be me accepting that this will never happen naturally, so I don't want to. A natural bfp might not have happened in more than three years of ttc, but that doesn't mean it never will, right?

my stats:
34, ttc#1 since 2010, 1 tfmr, 1mc, 2mmc, pg (on aspirin & prog since BFP)

so sad to hear so much bad news
barking just cannot believe it. I'm so sorry love.
sun so sorry

monten I read the thread and got so bloody angry - totally out of order. Fine if they want to keep their heads in the sand. Not fine to make accusations like that Wandered onto the thread as had a conversation a couple of days ago with my friend in the US. She had her DS after ttc#1, uncomplicated pregnancy. I was asking her about screening tests (?I think many US hospitals use Harmony) and she was clueless! Didnt even knowwhat I meant when I talked about nuchal thickness, or the trisomies. At first she thought I was weird for even asking about it, then conceded that she was quite innocent/ignorant, probably as it was her first pregnancy. And she seemed to get that it would have been very different if there was a problem/if it was her 5th, like us.

Been away from the thread as been nauseeos/vomiting/dizzy/exhausted and been trying to sleep as much as I can (so much for working at home!). Also been somewhat crippled with anxiety over theabdo pain Ive been getting for the last week . Scan tomorrow - DP can't come but have persuaded DM to hold my hand instead. So scared - I hate that room so much...

Barking maybe hold off on the acupuncture and re-start it again nearer June?

My acupuncturist has said that rather than "just carry on" to go back to him when it's implantation time. That way I'm not just spending loads of money

So I've stopped for time being but will carry on again

Hi everyone. Thanks for the thread just

Marking my place stats are
Me 40 DH 42
18 months to conceive mc1 Dec 10 at 6 weeks natural
Ds born Dec 11 bleeding at 7 weeks and 14 weeks
18 months to conceive mc2 aug 14 at 6 weeks natural
Mc3 Mar 15 at 12 weeks after seeing heartbeat at 7 and 10 weeks. Baby measured 10+4. Had medical management.

Currently waiting for referral to rmc. Not done when it was supposed to have been so have spent over a week chasing up the appointment. Today found out my GP who was supposed to be speeding it up last week hasn't done anything. His secretary was going to ring me back at 10 this morning once she'd sorted it. Surprise surprise when I rang at 4 she'd gone home. Still no further on and getting increasingly more pissed off! Why is no one interested in helping?!!!!!

Oh and going to try Coventry around May time if no joy at the rmc (if we ever bloody get there!)

Going to go back and read the thread now- waves to everyone xx

flen excellent post. I feel like that most of the time- the helpless part. Need to start getting some control before I just lie down and give up (which isn't far off!)

brummie I agree, why are they allowed to talk about baby/pg stuff in front of you, no problem but you're not allowed to show the hurt and sadness of the other side of it. Sensitivity goes both ways in my opinion. The other night when I went out with my baby bomber friend and seven month pg friend + one non pg but not wanting to be, I had to happily join in with thinking up names for 7 monthers baby girl. (My baby bomber friend did look very uncomfortable about it to be fair and she hasn't shared her news either). The other two didn't seem in the slightest bit concerned and don't think for a minute even thought I would be upset by it.
My 7 monther friend texted last night and said I'd be pg soon and it would be worth the wait and all the upset! No it won't. Nothing would take away the shitness of having three babies die!

enlightened good luck tomorrow and hand holding here. Sorry that scan rooms are not the happy places they should be, totally understand.

barking I'm wondering about acupuncture too. Got an appointment in 3 weeks but not sure whether to stop after that. It's a lot to spend but it definitely did sort my cycles and I feel trapped into doing it, like it'll all go wrong if I stop.

Wow new feed already!

Me 34, DH 35. Currently 28 weeks pregnant with DC#1 after 6 years of infertility and failed treatments. Had two mcs at around 10 weeks last year and a suspected early one at 6 weeks in 2013. Fighting for equality in fertility and mc treatment across the UK.

brummie people amaze me with their selfishness and thoughtless ways. Hope you can enjoy a nice old glass of wine tonight go take the edge off. Thinking of you.

barking I think acupuncture is just nice, ttc or no. Can you keep it up as some you time? And absolutely a bfp could still happen naturally so keep doing it my lovely, someone I know got duffed after 4 years.

X

Hi all, thanks for the new thread just
Stats: me: 35, dh: 32. No dc. M/c 1: July 2014 at 6w4d, m/c 2: Feb 2015 at 8w4d ( was twins).
As of today, am pregnant. (Not easy to write out loud, iykwim). All tests so far from RMC are fine, awaiting thrombo results. Started progesterone this morning. 1st scan to be in 2 wks. Pragmatic and numb (but I do appreciate being in this situation).

Marking my spot. Should get Internet back tomorrow then you won't be able to shut me up!

Me 37, DP 46, DP DS 14
MC1 at 6+1. Sep 2014. Empty sac, no fetal pole.
MC2 saw heartbeat, measuring 6 weeks. ERPC Jan 2015
Tested negative for blood clotting, APS and lupus.
Neg for thyroid antibodies
Coventry last Thu, prescribed progesterone from day 21, but may check that as cycles were 26 days per mc. WTF cycle was 31, next was 27 and last was 24.

Going back to age talk....Things are still up and down here. As we get closer to TTC again I seem to be finding everything to worry about. DPs son stayed with us last week when we were moving house last week which of course is quite stressful, but yesterday I was seriously considering leaving DP. I was questioning whether our parenting styles were too different and how I would cope with a teenager when I'm in my 50's and DP 60's and convincing myself I'll be a terrible mother and it would be better if I just walk away now. Of course I do really want a family with DP and it's really all fear of losing another one. Actually feel excited about trying again today, strange how the mind works. Now I'm worrying about how we'll DTD in this tiny house (no sound insulation anywhere) with 14yo in the house.

Good luck with scan tomorrow enlightened

Minnie that sounds really shit. Why do we end up having to chase everything! So frustrating for you. I hope they pull their finger out tomorrow.

Brummie sorry colleagues are being so insensitive. Wish I had some advice to offer. Think I'd probably slam some papers on my desk and storm off, not very mature I know.

Flen another fan of your blog here! Definitely thought provoking in the way I'm thinking.