Anyone with experience of Trevor Mann Baby Unit in Brighton? PinkyNail is here, it could go either way and I'm scared

(385 Posts)
BadNails Wed 18-Jan-12 17:30:06

Are they good here? Do the nurses advocate for you? Or am I going to have to fight for her every step of the way? I'm slowly running out of fight.

They think she has NEC. She was doing so well, I can't believe it.

I'm on my phone, just waiting with DP. I need some hope. She was baptised today so I know I'm not in a good place.

snuffaluffagus Wed 18-Jan-12 17:32:36

Aw, I've no experience with it but just wanted to say my thoughts are with you and I hope she gets better soon. Stay strong.x

zukiecat Wed 18-Jan-12 17:35:26

Message withdrawn at poster's request.

WillbeanChariot Wed 18-Jan-12 17:37:26

Oh BadNails . I'm sorry she's having a rough ride. I've no experience of that unit, just wanted to offer a hand to hold. What is the treatment plan? DS had suspected NEC. It was treated with heavy duty antibiotics and cleared. Fingers crossed that works for Pinky. Transfers are so stressful and I understand that feeling of running out of fight.

I have been where you are, DS was baptised the day after he was born. I am sure it gave him some strength to pull through. I will say a prayer for Pinky on her christening day, and I am willing her on and sending you all positive thoughts.

ZhenThereWereTwo Wed 18-Jan-12 17:38:10

Oh BadNails so sorry to hear that Pinky is unwell. I am sure the nurses and doctors there will do their utmost for her and your family. Sending you my thoughts and prayers x

BadNails Wed 18-Jan-12 17:38:55

Thank you. I know chat isn't the right place for this but I'm trying everything to distract myself. Three people have told me she is very sick. The consultant has said the next 12-24 hours are critical. She's 12 weeks actual age today. I just thought this was all behind us.

BadNails Wed 18-Jan-12 17:40:57

WillBean, I remember you. Thank you. Sorry for the short replies. It ain't easy on an htc.

BadNails Wed 18-Jan-12 17:42:34

Forgot to answer your question. Treatment plan is antibiotics once the surgeon has reviewed her. Surgery if the problem with her gut is too severe. Watch and wait sad

zukiecat Wed 18-Jan-12 17:43:48

Message withdrawn at poster's request.

JjandtheBean Wed 18-Jan-12 17:45:48

Saying a prayer and sending love and strength to you bad and pinky take care.

Fwiw when ds was nicu they were the most amazing supportive people working there I've ever met, we were told his first 24hours were crititcal and he's now a moody 4yo!

BadNails Wed 18-Jan-12 17:46:16

Thank you Zhen and Zukie

WillbeanChariot Wed 18-Jan-12 17:46:37

Don't think of replying, check in when you can and get some support if it helps. Spend time with her, sing to her, chat to her, touch her if you can. Take care of yourself, make sure you have breaks and eat. Are they considering surgery?

Come on PinkyNail, you can do it.

WillbeanChariot Wed 18-Jan-12 17:47:58

X post. Hope the antibios do it. It sounds as though she is getting good care. Thinking of you all.

BadNails Wed 18-Jan-12 17:51:02

Can't be with her at the mo. The surgeons are surrounding her sad we're waiting for someone to update us. I'm going into numb survival mode now. It's shit.

breathedeeply Wed 18-Jan-12 17:53:52

My sister's third baby was 8 weeks premature and had NEC and she survived. Nevertheless it was an awful time. Generally the first 24 hours are critical.

WillbeanChariot Wed 18-Jan-12 17:55:56

Oh that is the worst, the waiting, and it's really hard when you are somewhere unfamiliar and don't know the nurses. I am crossing everything that you will hear better news soon.

Positive thoughts en route from DH in Norwich too (he doesn't do prayers).

fergoose Wed 18-Jan-12 17:58:31

I have no experience but I just wanted to say I will thinking of you and hope all is well. Look after yourself and try and eat and rest if possible - difficult I know, but take care x

lucjam Italy Wed 18-Jan-12 18:02:33

Hi, I'm local, I beleive that the TMU is very good. If I can do anything to help at all please do shout, I'm only a 10 min drive from the RSC hospital. Thinking of you.

DreamingofSummer Wed 18-Jan-12 18:06:03

Hugs and prayers for you all

SarahStratton Wed 18-Jan-12 18:19:13

Hugs and prayers from me too. Thinking of you BadNails and little PinkyNail.

Hi I am local too and likewise, anything you need, give us a shout.
I have alsp heard the TMU is fantastic.

{{hugs}} and prayers for you and babypinky xxx

AtYourCervix Croatia Wed 18-Jan-12 18:25:08

thoughts, vibes, prayers and strength for pinky.

weblette Wed 18-Jan-12 18:25:08

sad Thinking of you and Pinky x

<hugs>

a friend was there with her little boy, who sadly died, and she said the nurses were absoltuely fantastic. in fact, all the staff were, she can't speak highly enough of them

i hope your little girl gets better soon.

BadNails Wed 18-Jan-12 18:26:18

Thank you everyone. It's not looking good. Surgeons will be back in a couple of hours. Consultant believes surgery will take place even if it's just exploratory. As usual, I'm sat here expressing wondering what the fucking point is.

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