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Please hold my hand - cancer.

(987 Posts)
Trazzletoes Tue 02-Oct-12 10:31:11

Currently in hospital since last night with DS who is 3. Scans show masses on his brain. Drs believe them to be tumours, likely to have come from his abdomen.

Waiting for more scans/tests etc. staff are being overly nice to us which is worrying me more (though they did refer us to social services last night as they thought DH or I had fractured DS' skull.

Feel incredibly sick. He is 3 years old. Please hold my hand.

JustSpidero Mon 15-Oct-12 15:48:38

Glad to see things are on a slightly more even keel for the time being at least.

I saw a leaflet at work this morning and thought of you - I'm sure someone will have mentioned it already, but have you and your DH and other close family members that are helping you out regularly at the moment looked into getting the flu jab? It is recommended for those who have a family member with a weakened immune system, and the current vaccine formulation has changed since last year to combat some new/different strains, so even if you had it when pregnant with your DD last year it would be worth looking into getting it done again.

Hope all goes well with the NG tube. I'm at work Mon-Thurs but will aim to update the map for you at the end of the week smile.

BuffyFairy Mon 15-Oct-12 16:24:54

Hi, hope the tube fitting goes well and takes away some of the stress once ds gets used to it.

Glad that you and dd are better.... And that you have a washing machine again grin

Will check back in later, still thinking if you all of course. Sorry I've been quiet these past couple of days - poorly dd sad

123caughtaflea Mon 15-Oct-12 21:07:53

No deep darkness in the night,
Can overcome the light,
If but a single candle flame
Is burning, burning bright.

Love to you and yours TT.

www.gratefulness.org/candles (group = TT) xx

Trazzletoes Mon 15-Oct-12 22:59:03

Thank you, Rowan.

New thread here

Thanks for the info re: flu jabs. I'm calling the GP tomorrow - we're already on it. DD has to have a chickenpox jab too. Poor lamb.

DS did NOT appreciate having a plastic tube stuck up his nose. Lucky me, he decided that Mummy was the person to accompany him for the procedure. I don't think me holding his hand and sobbing my eyes out did too much for him. Perhaps he'll pick Daddy next time.

Still, they've left the feeding for tonight to let him settle a bit as he keeps trying to pull it out, but will start tomorrow.

Chemo has started ok, I think.

The Drs found cancer cells in his bone marrow and also in his arm and leg bones. Nothing unexpected. Must remember to ask whether this means he's going to have weak bones afterwards.

He's had a horrific tummy this afternoon. Very much hoping that it is a reaction to the antibiotics rather than anything more sinister, but good God I hope this doesn't happen every 10 days. Poor lamb was getting very distressed by the sheer volume of mess everywhere.

Anyway, must dash as am off to bed. Sleep well. Thanks for the support xxx see you on the new thread!

Trazzletoes Mon 15-Oct-12 22:59:56

Buffy sorry to hear about DD. Please give her big sloppy kisses from me and DD. Hope she's feeling better soon and you don't catch it.

onedev Mon 15-Oct-12 23:01:31

Hope you all have a restful nights sleep.

Thumbwitch Mon 15-Oct-12 23:06:49

Sorry to hear about the extra cancer cells they've found and hope that the chemo does for them as well. Will he be having radiotherapy on any areas, do you know?

Sounds like you're really going through the mill just now but hopefully things will settle down a bit and the NG tube should help with keeping weight on him and getting the foul medicines down at least.

Trazzletoes Mon 15-Oct-12 23:22:26

Yes to radiotherapy provided everything works til then. Extra cancer is a bit meh. Apparently, what's important is not how far the cancer has spread but whether his cancer responds to treatment.

He could be 95% cancer but still have a better chance than someone with 5 very resistant cells IYSWIM. Am hoping his cancer is a total pansy and not like, say, jean Claude van damme...

barefootcook Mon 15-Oct-12 23:30:43

Hi there

What is the map and can anyone join? Trazzle, you try and get some sleep but if anyone has a minute to explain in the next day or two I'd love to know. I hope you both get some rest tonight and you have a better day tomorrow.

JustSpidero Mon 15-Oct-12 23:37:58

Hi Trazzles - sorry the news wasn't better but your talk about Jean Claude Van Damme made me wonder what the opposite would be - the Napoleon Dynamite of cancer cells perhaps?!

Hope your little man is more settled with tube tomorrow and chemo goes well. Glad the flu jab info was useful.

barefoot - map is here and here for all the Mumnetters routing for LittleTrazzle and family.

If anyone who hasn't done so already wants to mention where they are I will update the map Thursday eve/Friday morning.

sweetiepie1979 Tue 16-Oct-12 09:33:04

Hi from Northern Ireland ill light a candle for you all today. I'm thinking of you. Your a wonderful strong mother.

MrsY Tue 16-Oct-12 20:58:17

Thinking of you trazzle. One day at a time is the only way to do it. x

JustSpidero, can you add another light on your map - I'm Maidstone. Candle is lit, as always, and I am thinking of LittleTrazzle and all who need light and love.

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