Partial molar and molar pregnancy support thread - all welcome!(533 Posts)
I thought I would start this thread as a place where anyone who is going this or has gone through this in the past could share experiences, vent about life, etc.
After a MMC at 12 weeks and an ERPC a few weeks ago I've just found out the cause was a partial mole. I've been referred to Charing Cross and am waiting to hear back from them to start the monitoring etc.
I know the chances of cancer developing are about 1/100 but I'm still struggling with the 'OMG I'm going to die' feeling at the moment, plus the grief and stress of the miscarriage itself.
I haven't told anyone in RL, other than dh, even friends who know about the miscarriage. I'm worried abut how they'll react and that I'll end up blubbing.
Really sorry you're having to go through this Bex1206, it's very hard. It's completely unacceptable that you've seen this information in your notes and it hasn't been explained to you but try not to panic too much until things have been confirmed. With an ERPC they can check whether there were any abnormalities with the tissue and it might be that you have had a partial molar pregnancy (where the abnormalities are with the placenta) or they might be able to rule it out. If it is molar, you will probably be asked to come back to see a consultant at the hospital and they will need to refer you to a specialist centre who will do some further tests and monitor your hormone levels. In the meantime just concentrate on your own physical and mental recovery. Do use contraception until you know what's going on. Try not to panic yourself by reading lots about molar pregnancies because it might not be that, and if it is, it might be tough going for a bit, delaying your plans for another baby and giving you uncertainty to deal with, but it's not always the worst case scenario. I had a partial molar last year. It was a tough time but I'm pregnant again, due in a few weeks. Have some support at the ready and you'll be ok. Best of luck x
So I had my erpc this morning, I went to see the surgeon just before theatre and she was lovely but I was left very confused. She said I had to start taking contraception straight away and not to try again until after my results are back. She kept saying if it's what we think it is but wouldn't say anymore. As far as I was concerned the babies heart had stopped and there wasn't much more to it. Anyway everything went absolutely fine, she came out to see me after and again kept saying about results and if it's what we think. I had no idea what she meant. I was discharged from the hospital and given my notes to take to my GP only to read suspected partial molar pregnancy. Now I'm in even more of a mess and can't see my GP for another 6 days to get some answers. I just wish the surgeon had said this instead of just writing it on my notes, that way I could be more prepared.....sorry to rant but I just need some support?
I'm so sorry sardeano I bled for a long time too. I hope your levels are even lower on Monday.
Hi hope no one minds me posting. I had a partial molar pregnancy. Went to 12 week scan , no heartbeat tests on bubba showed molar. It's been 7 weeks since my dnc. I'm still bleeding it's been so long getting me down now. I'm under charing cross. My levels were 33 two weeks ago. More results Monday. I just want it to be over ,this is my second misscarriage in 8 months. Xsorry for everyone's losses. X
Thank you Hels. First lot of numbers were 26, which she said was good. Due another lots tomorrow hopefully they'll be down again. No more bleeding and I'm still not sure what the last lot was. Waiting patiently is hard! Thanks for checking in on us again. Hope all is well with you. X
Yes, you can never really tell what the bleeding means and Charing x always says that could be either good (getting rid of tissue) or bad (re-growth) but either way it's scary and unpleasant. Sending you lots of sympathy. How are your numbers doing now?
Hi Hels, I hope you are well, thanks for checking in with us.
Got my first testing kit in the post today and had a bit of bother convincing the gp to give me an appt to take blood. Getting pretty sick of having to keep explaining condition that no ones ever heard of, but sure I'll get used to it!
Seem to have started bleeding again 4 weeks after ERPC and 2 weeks after it stopped. Not sure if it's return of period or something more sinister.
Will ring Charing x in the morning.
Take care all
Hi Choy and Purple, sorry for delayed reply, been a bit distracted …
Charing X are so great, you are in very capable hands but do get in touch if anything is worrying you. I bled on and off after the erpc which really made me worried and it was great to have people here to support me.
Purple, how is it going? Have you had your baby?
Thanks Purple, me too. Hope you are ok, and good luck! X
Hi choy sorry histology confirmed cmp, hoping your levels come down quickly
Thank you nehagarg - I feel stronger now than I have done so far, so that's something! That's such good news for you though, I really am so pleased for you it wasn't a molar. Now you can focus on a bright future. All the very best of luck x
Oh no choystory. I wish you all the strength and love while you are testing the next few months. I am sure all will be well very soon!
My results came back negative for a molar pregnancy so I am just waiting for AF so we can begin trying again.
All my thoughts are with you.
Hi Nehagarg how did your results come back? Sounds like with 2 neg preg tests it all should be fine nice and low.
I had myfollow up today and the histology confirmed complete molar. I will be referred to Charing x. But the consultant, who said she'd seen many many molars in her time, was very reassuring and confident that I was on a good road to recovery. So that's given me a boost as first bit of non-awful news in a month. I'll start the testing within the fortnight and just keep crossing everything that the levels come down.
Sending you all best wishes.
Hey choystory ... The very best of luck. I really hope yours come back negative fir the molar pregnancy. I an still waiting for mine. Crossing everything that the sonographer messed up when he thought he saw a partial molar pregnancy.
My hCG levels should be low enough now. Did 2 pregnancy tests on sunday and both were negative. So hoping for super low numbers when docs check my hCG again on wednesday. That way even if histology says i had a partial molar, i wont have insanely long to wait before i can try again.
How about you? Had any hCGs done yet. I am so sorry that any of us have to be on this thread at all.
Hi nehagarg. How are you feeling? Did you get your histology results? I haven't had mine yet will do on Friday. Hoping for good levels, and hope you get encouraging feedback from your numbers. X
I have been a lurker on this thread for a while ... Really hope everyone who has been a part of this thread is doing well now and on their road to recovery! Quick question please. My sonographer thought he saw what could be a partial molar on the scan when they diagnosed my mmc. I am awaiting histology results but my hCG levels have dropped to 66 ... 9 days after having an ERPC ... Are these levels okay? I was 11 weeks when I had the ERPC but baby had died at 6 weeks. Not sure if 66 hCG is something to be optimistic about.
Sorry for the vague question ... clutching at straws here while I (im)patiently wait for histology results to come back.
Thanks for your help
Hi Hels, thanks for posting. How are you feeling now some months on from the methotrexate treatment? I hope that your recovery is going well. Such a hard thing to go through. I'm pretty frightened of the prospect.
I'm feeling a bit more positive the past few days after lovely GP gave me all clear to resume some normal routine. It feels good to be outdoors and a bit more active.
Counting down the days til my follow up and results of histology as I want to get monitoring started and not just waiting around in limbo.
Hi Choy, mine was complete too. I had to have methotrexate in the end but it really could have been a lot worse. Peoples' reactions are one of the hardest things to deal with: "But you LOOK really well?!"
Purple -such lovely news, congratulations!
Congratulations purple that's absolutely wonderful news! Good for you I'm so pleased. Fantastic fantastic. So good to hear your story. I'm going to try try try to concentrate on getting over the ERPC and not obsess over the probabilities and possibilities while I'm waiting for results. Wishing you so very well for the rest of your pregnancy and of course the birth and everything that follows xx
It's very difficult in the beginning, people just don't understand. I found it a bit easier when the follow up had started and I could see my hcg levels falling. I really struggled when first diagnosed, I couldn't eat sleep or go to work and thought I was never going to have a baby but I'm now nearly 37 weeks pregnant. Xx
Thanks for replying. It's good to hear a positive story of a complete molar. They seem to be so rare. I'm feeling pretty isolated. Friends who I have told have had miscarriages and try to reassure me that we can try again and it won't mean anything for the future, but at this point we just don't know that and it's so hard to keep positive. That's why it means so much to hear a good outcome like yours. I really hope you are well now and the future is bright. Thanks againX
Hi choy I had a complete molar pregnancy, it was a real shock and I really struggled for a while. I only needed 6 months of follow up, no treatment.
Thank you Tiddles. I hope you are well now x
Take care of yourself Choy. I found it quite tough for a few weeks trying to get my head around it all. Hope you get happy news xx
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