I have booked a double appointment with a GP I've never met, on Monday.
Please help me get it right. I've got loads to cover and he's never met me before & I need to give a good impression and make him understand and not dismiss me or refuse to engage with me.
I've have terrible experiences with GPs who've abdicated any responsibility for helping me manage my complex and horribly disabling condition.
Ideally I wouldn't have so much to cover but unfortuneately several things are now urgent since I plucked up courage to make the appointment :(
It's really last chance saloon time to get gp to actually to their job. Someone from the hospital has spoken to him about the practices failure to engage with me or do their jobs, which has jeopardised my health and my mental health through the neglect and refusal to help me access medical care. I've never met this particular gp and apparently he's agreed that my condition needs management and he prepared to do it.
So now I have to go meet him and I'm terrified. I need this to work. But I am having pretty much daily panic attacks (I don't normally, it's the thought of the GP), and I'm on the point of collapse anyway... Which makes it very easy for me to get dissmissed as a hysterical pathetic waste of time :(
Here's what I need to cover... But clearly can't in the time...
- introduction to my situation including complex systemic condition with multiple secondary conditions and issues
- introduction to me and my personal situation (& my terror of gps!)
- What the GP is going to do to help me manage my condition re. Referrals, drug management & plan of treatment/ contingency plans (as they've refused to treat me on numerous occasions in an emergency which just isn't ok). See below as this involves lots...
- Intervening in the terrible hospital situation I'm in, need an operation urgently but cannot have the consultant who was terrible (see previous thread)
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3a This involves a complaint about the constant and awful mistakes with repeat prescriptions which in recent weeks have fucked up me trying to Titrate down off a drug but had to go back up you're Xmas levels due to them fucking up (& many more examples all recent)... And what he's going to do to ensure this doesn't keep happening
3b new prescription from consultant appointment yesterday
3c how he can help manage me going onto a drug that was prescribed months ago but I haven't taken due to terrible side effects last time which no one spotted and they forced me to keep taking for months before I realised on my own what was making me so ill
3d chase up pysch referral as I think he's just referred me for big standard councelling which isn't appropriate - they just can't cope with the amount of stuff going on and aren't qualified with the specialist stuff which happens when you lose your whole life, identity, future and self. Oh and 2 close family members to the same condition, and your son is now showing symptoms. And that's just a couple of things there's loads more which has given me bad ptsd and more...
3e. An agreement to work with adult social services and not against them
/ against me especially when they give inaccurate info based on nothing but their own prejudices & preconceptions... So not to do anything yet but be aware lots needs doing and be ok with talking to me another time about this
3.f be aware and agree to do the vast amount of blood tests, scans, gynae exams that they've been asked to do and have so far refused to. Again not do anything about it now but agree to start doing them ain the future
3.g. Be aware I have other medical needs beyond my condition which is like some help with eg smear test (but can't get on the bench thkng to have it done, & they will injure me unless they do it v carefully), and various lumps I need checking out (which probably should be urgent but I can't face dealing with it), and
3.h I'll need an appontment to talk about my son and options for him going forwards