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Tamoxifen 34 *the power of Sauron*

(989 Posts)

new thread !!!

PenPerson Fri 29-Mar-13 18:38:31

Found it

KurriKurri Fri 29-Mar-13 18:39:26

Ha - good title grin well done MAS

jchocchip Fri 29-Mar-13 18:44:00

Oh well done mas
bringing bunnies! smile smile busmile]
What shall we put on the trolley? hot cross buns anyone?

amberlight Fri 29-Mar-13 18:57:04

Yay!!!

grin marking spot

topsyturner Fri 29-Mar-13 19:31:33

Fabulous !
Sauron approves ...

NedSchneebly Fri 29-Mar-13 19:44:27

Excellent title grin

Marking place. Currently drinking new black cherry bulmers cider. 'Tis rather tasty. . .

grin
Think our w machine bearings have gone, it made a terrible grinding noise while spinning...it's nearly 8 years old,so I guess i've worn it out - v good though - am ringing man tomorrow...

Gigondas Fri 29-Mar-13 20:01:11

Marking spot

Copthallresident Fri 29-Mar-13 22:12:19

goondog bows

AshokanFarewell Fri 29-Mar-13 23:19:48

Helloooo grin I shall try and reply to posts on the old thread here, I hope that's the done thing and I'm not breaking some unspoken Mumsnet rule!

I'm super pleased because I've made it to the end of day 10 and last time I saw him Dr W said if I could get to day ten we would count that as a success. I'm hoping to make it to day 14 but thinking that's not that likely at the mo as my skin is incredibly painful and I can barely sit still sadblush

Ginger don't worry about talking about yourself, I was just the same at first. It is all very new and you will have lots of questions. You'll soon find that you're an expert in all sorts of things you don't want to be an expert in. I've not had much vomiting with the chemo, mainly just nausea. I've vomited a few times but always straight after a meal and then once it's all out I'm fine, my oncologist didn't think that was from the chemo, just my new plumbing. That's with the capecitabine though.

I have some mini choc muffins for the trolley.

Ned I hope DS feels better soon.

Gig I've chosen "Pink Bunting" it's a fairly pale, quite dusky pink. I'm going to get some new bedding with flowers on and make it all lovely and a bit girly! Now I have Hotel California stuck in my head "you can check out any time you like, but you can never leave" definitely like the cancer club!

Amber I've read something before about total darkness at night, is that for everyone or for specific cancers only?

amberlight Sat 30-Mar-13 07:39:52

All cancers. The more the body shuts down at night, the slower cancer grows and more chance chemo etc has to attack it. There's more science to it than that, but bodies respond to light levels. If you must have light on, make it a nice dim orange light, not a bright white or blue-tinted one. http://www.health.harvard.edu/newsletters/Harvard_Health_Letter/2012/May/blue-light-has-a-dark-side/

HerNextDoorAt21 Sat 30-Mar-13 08:32:59

Skulks in very shamefully I am a victim of reading and not replying then it getting way too long to catch up and thinking I'd better not post ...... 1000 apologies to all of you lovely ladies who have given me lots if support ...... topsy keeps me posted on important developments whilst consuming beverages in my kitchen !

gigs I can't believe where you find yourself at the moment and I sent you most unmumsnetty love and plenty of hugs.

As for me, a piece of tissue died on my graft from my back and I also have a hole on the other side of the graft. I have fat necrosis which means that tissue is breaking down and leaking out of the holes ...... Yum yum I hear you say !

I now have a very attractive vacuum pump in a handbag thing that I have to wear 24/7 to hopefully take away the fluid quicker and let the skin graft heal properly. It's very cumbersome to carry around but coming to this board makes me actually realise how flipping lucky I am.

I will endeavour to join in more ..... Make the most of the last freedom before u go back to work !

Copthallresident Sat 30-Mar-13 08:34:45

gigs I think both Cancerland and Hotel California have that you can never leave thing in common. Eleven years on and there are days I don't think about it and some very nice statistics to contemplate, infinitely better than the ones on Day 1 anyway, but my life has definitely changed forever in many ways, still don't have the same trust in life and my body I had before, and my body is definitely wounded in action, and even my insurance company agree I am not "cured" and need to trundle along for an annual check up.

But Hotel California is an earworm en.wikipedia.org/wiki/Earworm Make it go away!!

Copthallresident Sat 30-Mar-13 08:45:56

hnd Lovely to hear from you in person, this thread moves so quickly it is hard to keep up unless you are KK who is the star of the complete reply smile Sorry it is all taking so long. Friend had necrosis caused by chemo but has a lovely tit now smile The new handbag accessory sounds interesting, can you not get Victoria Beckham to go out with one, then you can be at the forefront of fashion?

is Topsy in your kitchen consuming beverages now? <fondles Damien who is here helping me find my Easter decorations, he is handy that way, he has some strange make up on though>

hnd welcome back- vacuum pump sounds most cumbersome but hope it sorts everything out and you're feeling ok...I saw your picture on fb with it and you looked v well -I couldn't trll which side was the surgery side either grin

topsyturner Sat 30-Mar-13 09:21:34

PUT DAMIEN DOWN !!!!!!!

Copthallresident Sat 30-Mar-13 09:26:25

NO!!!

topsyturner Sat 30-Mar-13 10:47:52

<cries>

Gigondas Sat 30-Mar-13 12:00:38

Morning all- very sore but managed to find comfortable way to lie (thanks to one of old breast feeding cushions) and on first day of going back to how I do pain meds so hopeful that will be easier now. I have found since gone into hospital I feel worse which may be cos mucked about with my pain meds but also psychological.

Hnd- sorry drains are so cumbersome but hope they sort it out. As copthall says , it is common to get infections so am sure will resolve it in the end.

Am worried by alliance between sauron and Damian..looking out of window for signs of the new era dawning (and waiting for dh to get back from soft play to take me for some medicinal dim sum).

topsyturner Sat 30-Mar-13 12:50:37

Mmm dim sum .....
Have some extra for me please !
Going to HNDs for pub night later .
Need the break as both the DC and DH are home and annoying me till at least Wednesday ...

KurriKurri Sat 30-Mar-13 13:36:14

Dashing in and waving to all - hope everyone is having a good weekend.
Asho - well done on reaching day ten reasonably unscathed - that is good going smile
Your new bedroom decor sound very pretty and fresh - I love dusky pink.

HND - do not stay away because you get behind in posts, - we want to see you, no one expects people to keep up with posts and news, - just dive in and tell us how you are doing. The vacuum pump accessory sounds useful but cumbersome, - sorry you are having such horrid wound problems - that must get you down a bit, but hopefully with the new pump action it will start to heal.

Copt - I suspect 'KK is star of the complete reply' is very kind and complimentary way of saying, 'KK is a long winded wittering old fool who is never off her computer' gringrin

Gig - sorry pain is 'being a pain' as it were, I'm sure emotional battering plays a part and makes pain worse, but once you have your op. hopefully you will feel a lot better in every way. <<hugs>> - what are the tiny Gigs up to today?

Waving to lovely Ned - hope you have a nice break over Easter.

I've just done my grocery shopping - for some reason Waitrose sent us a card to get 10% off shopping so we went there and got some nice stuff (usually a bit on the expensive side, but with the reduction not too bad)
I have brought ingredients for the 7000 calorie a slice Rocky road, so expect some on the trolley later. Also some nice cheeses - cracker and wensleydale Gromit anyone? grin

How does Sauron like being the star of his own thread topsy grin old lady dog would be jealous if she wasn't busy making a nest and hiding a biscuit in DH's fleece grin

It is snowing here AGAIN - if this goes on much longer I will lose what is left of my mind.

topsyturner Sat 30-Mar-13 13:49:35

Sauron is turning into a bit of a diva and demanding his own dressing room kk !

<holds plate out hopefully for rocky road>

I was having a thunk yesterday (dangerous territory I know) and I was thinking "shouldn't I be on herceptin now ?"
It would have been my mop up drug regime had I not had my miraculous combustion .
So shouldn't I still have it ?
Not wishing more drugs on myself , just don't want this bastard coming back !!!

KurriKurri Sat 30-Mar-13 13:58:48

Oh definitely check out the herceptin topsy - I think you have to have it within a certain time frame of chemo (quite a long time period I think but not unlimited), - it sounds as if they might have forgotten you were supposed to have it what with everything else that was happening.

Havent made the rocky road yet, you will have to wait. Put the plate down and sit nicely. grin

I presume Sauron is setting aside some time for signing Pawtographs <he he he!>

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