A bit of background to start with. After coming up to twenty years of 'episodes' my father is currently in hospital, soon to be discharged. These episodes started off with stroke like symptoms of occasional collapsing, losing the use of his limbs and fine motor skills, confusion and talking gibberish. Two and a half years ago he had a major hemorrhagic stroke, which resulted in these symptoms being virtually permanent.
He can still walk, albeit slow and unsteady. He was also regaining his speech (again slow) and would experience semi regular confusion. He lives with my mother who is his main carer.
Eighteen months ago he was admitted to hospital in extreme agitation and distress and was there for several weeks unable to do anything.
Three weeks ago he was admitted again after a fall with similar symptoms-extreme agitation, confusion. He has gone through phases of not knowing who we are, shouting, uncontrollable sobbing, incontinence. All very distressing. A CT scan indicated a bleed on his brain.
At the moment he is ok. He is in hospital awaiting an MRI scan. Unfortunately, he is not on an appropriate ward and the Registrar has made it very clear that they are just seeing to his basic needs and not investigating him further. His consultant neurosurgeon (who he has only met once and is at a separate hospital) has requested this MRI and that's about it.
No one seems to know what it is that is wrong with him, or help.
My mom is now refusing to have him back home (even though physically he is well) she says she cannot cope with him anymore. The hospital want him out, she won't have him home. I physically do not have the space here to look after him (I also have two young children and work). What can we do? He seems too well to go into a home (I feel this is only a very last resort). All daycare centres seem to be for elderly people, he's only 63! Help! Surely we cannot be the only people in this situation. The term vascular dementia was given as an explanation of his symptoms, but not a definite diagnosis.
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Mental health
Respite care for early onset vascular dementia
4 replies
Liliput2013 · 02/06/2016 09:34
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