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High dose chemo and beyond. Onwards and upwards hopefully!

(1000 Posts)
Trazzletoes Mon 25-Feb-13 21:42:02

Another continuation thread for Joseph's ongoing fight against the aggressive cancer, neuroblastoma.

Been thinking about you all day trazzle, still gingers crossed x

Alibabaandthe40nappies Sat 13-Apr-13 22:49:44

Trazzles you and Joe, and DH and DD have been in my thoughts all day. Sending you strength and love x

Just checking in to let you know that , and my family, have been thinking about Joe all day. A candle burns in Bath and London for the Trazzles tonight.

lougle Sat 13-Apr-13 23:34:10

Thinking of you as the night draws in.

narmada Sat 13-Apr-13 23:43:27

Still thinking of you in Surrey.

ToffeeWhirl Sat 13-Apr-13 23:58:25

Thinking of you too. xxx

BarmeeMarmee Sun 14-Apr-13 00:10:14

Thinking of you also x

lemontwist Sun 14-Apr-13 00:10:23

De-lurking to say I am thinking of you. You and little Joe are in so many peoples thoughts tonight. You have been so strong through this. Sending love and light for all the Trazzles.

saffronwblue Sun 14-Apr-13 00:32:10

Still thinking of you as the day begins in Australia. Big splodge of light.

Ohwooisme Sun 14-Apr-13 00:37:31

Thinking of you all. Xx

toffeelolly Sun 14-Apr-13 01:35:21

Thinking of you all. xx

PseudoBadger Sun 14-Apr-13 03:08:36

Woke in the night and thought of Joe and you all xx

As you have been so often, you are my first thought on waking.
Sending so much love to you all

weebarra Sun 14-Apr-13 07:20:41

Thinking of you all this moring.

Thurlow Sun 14-Apr-13 08:03:43

Oh, trazzle. Sending so much love to you and your family. I wish there was something we could do for you. Everyone who prays is praying for you, everyone who hopes is hoping for you. Thinking of you all this morning and hoping that the sunshine brings something nice for your family x

Trazzletoes Sun 14-Apr-13 08:03:55

Thanks all of you. It really helps.

Joe is happy to be home and his sister is absolutely over-the-moon to have him here so she can rub his head. Her pure delight in the face of everything that is going on is keeping our spirits up.

Joseph is understandably tiring very easily - he has done more yesterday than he had managed in a whole week of hospital, sitting up and playing... DH had got him a playmobil castle and he and DD have spent hours playing with it - he obviously gets the knights to fight each other, she posts bits of jigsaws in the turrets grin

We had a little trip out yesterday and then today we are off to the local stately home because they have some penguins there that Joe loves. He is very upset that he can't walk and I'm nervous that he will get upset when we have to walk past their play park, but we need to get out. We need him to have some fun and do some things he enjoys.

I guess I need to start a new thread... I'm not quite ready for life-limiting illness yet, I don't think, just in case the doctors tell us tomorrow it is all a huge mistake and the 5 or so consultants who have looked at the scans are all wrong. I just hope to god we have time to give him a bit of fun and happiness.

New thread will be in children's health still.

I have no idea how we can get through this.

Liz79 Sun 14-Apr-13 08:11:44

Big big hugs trazzles, I don't know what to say but you're always in my thoughts xxxxxsad

Jokat Sun 14-Apr-13 08:14:09

Trazzle I hope you'll have a good day and that Joe will have a lovely time today. I think of you all the time. I'm desperately sad that none of us can do anything to help Joe get better sad sad But loads of us are praying for you and your family . . . xxx

Trazzletoes Sun 14-Apr-13 08:15:07

new thread

Come and join me.

Bring chocolate.

Oh trazzles the pain in your writing is heartbreaking.
You poor love.

Now you do know that if Joe has the slightest whim or desi for anything at all, there are 100 Joe supporters here who would do ANYTHING to make him happy.
Remember, you will not be asking for yourself, you are asking for him. If he would like 37 stuffed penguins, just ask; a special chair, we will sort it out; more Playmobil...you won't be able to move for tiny bits of plastic.

Whatever you need and whenever you need it WE WILL HELP.

Trazzletoes Sun 14-Apr-13 08:24:51

Oh norks he just needs time. He needs days and weeks and months and years stretching out in front of him and filled with endless opportunity.

He just needs a bit of luck.

And nothing on earth can help with that sad

Oh lord sad

KnottyLocks Sun 14-Apr-13 08:33:43

sad

thewhistler Sun 14-Apr-13 09:00:30

Trazzle,

Praying for Joe and the gift of time.

And for all of you.

Will now jump thread.

StoicButStressed Sun 14-Apr-13 11:04:05

De-lurking to send my love and hope to you Trazzles

And to absolutely drive home what Norks said:

*'Now you do know that if Joe has the slightest whim or desi for anything at all, there are 100 Joe supporters here who would do ANYTHING to make him happy. Remember, you will not be asking for yourself, you are asking for him. If he would like 37 stuffed penguins, just ask; a special chair, we will sort it out; more Playmobil...you won't be able to move for tiny bits of plastic.

Whatever you need and whenever you need it WE WILL HELP.*

Truly, we can't give you what we would all so desperatly love to give you, but we CAN help with the things that could give (your so very beautiful) Joe and the rest of you fun and things he might enjoy - ANYTHING. Look how many of us there are Trazzles - if you said Joe and his beautiful sis wanted to go to Disneyland Paris (not so tiring as train all way and hotels in resort), then WE WOULD MAKE THAT HAPPEN.

Please - ANYTHING; just ask and we will together do. Xxxx

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