I wonder if it would be of any use to people to occasionally see what life's potentially like for a child with an ASD when they grow up? It'll only ever be one example (mine ) but it might help to explain how each day 'feels' for me...and bits would help explain life for anyone on the autistic spectrum, whether LFA or HFA or any other sort.
Today, 5am. Oh no, I'm awake again. Always been a very light sleeper. Try to get back to sleep for a little longer, but it's difficult because my brain automatically starts downloading all the info and planning for the day ahead (grr). Must have got back to sleep, as it's 6.30 when I next look at the clock. Attempt to pick up dressing gown from floor. This takes three attempts, since I'm not focusing on what I'm doing the first two times. Get downstairs and let dogs into garden and do the whole dog-feeding-kettle-on-dog beds-tidied-computer-switched-on routine. Feed dogs. Make cup of tea. Am feeling rather brave, so decide to try a new breakfast cereal as part of my "For goodness sakes try something new once in a while!" plan. Sit down at computer, take a bite of the new cereal, yuk. Urk. Horrible. Crunchy, too sweet, rough, strawberry-smelly, urk. Dogs have most of it. They seem happy. Answer some messages on the computer.
7.30. Better wake hubby up. Son's on half term now so at least he can sleep in. I now have the shower challenge. Showers involve water, which is wet, and the shower hurts. And the soap tends to get away from me. And my sense of balance is not good, so I take my life in my hands in any shower with a wet surface to stand on. Then there's the rough towel hazard too, even the ones that I wash in extra softener feel like sandpaper. And don't even talk to me about the toothbrush and toothpaste thing and how overwhelmingly minty and painful that is, but it all gets done.
Next really big challenge, the clothing. What to wear. I tend to have ten tops all the same but in different colours as that's easier than choosing different tops. And lots of the same trousers. Everything has been carefully felt and examined in the shop to see that it's very soft and non-scratchy as possible. Which colour...arrghh...can't wear the same colour every day, as that's Not Done so I have to choose one. Then, the hairbrush hazard. Hairbrushes hurt. Makeup next, which at least I can choose for being the right texture and non-smelly ones, though it's taken years to practise putting it on without having to take it off again because I've made a mistake with it. Get a hug from hubby, who's an absolute sweetie (he's ASD as well). I don't trust a lot of people to touch me, and unexpected hugs are always 'painful', but if I know I'm going to hug, it's fine.
Shoes...hmm. I have a 'blind spot' about shoes. I can't wear heels as I fall off them, so that means I have to wear flatties or boots, and any new shoes pinch, dig and hurt, so it takes ages to get the courage to wear a new pair anyway. OK, boots it is today, old familiar ones, polished to some sort of standard.
I'm exhausted, and it's only 8.15am. Now for the rest of the day...
Here are some suggested organisations that offer expert advice on special needs.
SN children
A day in the life of Amber
amber32002 · 23/10/2008 08:16
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