Hello all,
I am not new to mn, have previously posted in premature birth topic about my ds.
However i have been lurking on the sn board recently due to various problems my ds has been experiencing.
He was born at 31 + 4. I had the condition placenta praevia and suffered a massive haemorrage and he had to be delivered by emergency cs and I had to have a GA.
We spent 5 weeks in SCBU with him and the day he was discharged they did a routine brain scan on him and told us that he had suffered brain damage. They said it was probably due to lack of oxygen just before birth due to the blood loss. I cried all the way home from hospital.
After that we had appointments with his neonatologist and she said that the damage was done (although she worded it in a much better manner than that) and that they could not tell if it would have an affect on him or not. We would just have to wait and see.
I spent practically the next 8 months trying not to worry about it but then when he got to 10 months old (8 corrected) it became apparent to me that he was having difficulties. He can't sit alone, hates being on his tummy, never rolled over. Mentally he appears bright as a button.
Since then he has been referred by his consultant for physio which is due to start next week. He has also been given a corner seat with a tray and we are waiting for a walking frame type thing that the OT will come and show us how to use. I have also been offered help from a type of special needs pre-school teacher which I have also said yes to.
Just wanted to introduce myself really (please excuse my unfortunate name, that is what dh calls me. In light of what has happened this week, I could do with changing it but I don't want to. I had no idea what trolls were when I signed up!) and let you know that recently I have taken great strength from some of the people and situations on here.
Sorry if my tale is long! Thankyou.
Here are some suggested organisations that offer expert advice on special needs.
SN children
Hello, new to sn board but would really love to join.
pipintroll · 04/10/2008 21:28
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