I had a paed appointment yesterday to discuss everything to date with ds (16 months). So far the diagnosis has been movement disorder, then cerebral palsy, then just hypotonia with other issues, then a definate GDD & microcephaly... While this is just so much fun playing guess what ds might have, it's getting fairly frustrating as I'm starting to think that they don't actually know what they're talking about anymore.
At yesterday's appointment (ds observed at home for nearly 2 hours), she mentioned autism being on the cards (and has mentioned this at every appointment since he was about 5/6 months old). If that is what it's going to be, then it will be... but my question is has anyone's child started off their clinic route with movement issues being the main issue, and then it's gone away from that onto a social/language disorder primarily?
The lack of social skills and communication has always been there, but the movement issues were more noticable as the main 'symptom' hence the earlier thoughts to movement disorders. He also is now attending a CE school 3 times a year, and though they admit that his primary issue is not movement, they thought they could help.
I'm starting to get a little fed up as I don't know what to read up on anymore, and the professionals don't seem to really know what to suggest. Or is this how life in SN world is really, and I just need to adjust... which I'm guessing is the most likely answer!
Sorry for the ramble, but any thoughts on anything would be much appreciated.
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starting with GDD and/or movement disorder and then to autism?
30 replies
MommyUpNorth · 01/05/2008 09:35
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