After waiting for(virtually)ever, DS was due to go into Evalina on Mon to see
Cardiologist for ECG, Chest/lung Xrays, full body Xrays, loads more bloods (stay overnight) Tues Full body MRI, MRA, some diff cranial MRI to finally finalise our DX. Got tonsillitis again! (3rd time in 5 mths, only another 3 episodes to go in next 7 mths and they'll whip em out!)
We will have to go up and get the registrar to bump us, as have been told that if you don't turn up go to bottom of list - we also missed our 1st (sent home ill), did 2nd, this 3rd appt!
Have booked into local hotel, as can go home but need to be back by 8am and I thought both of us would get more rest in the Marriot! I can canx this tho
But it is his 3rd birthday tomorrow. The first year I have felt positive enough to actually have a party and invite other children. He now has friends and I'm not so freaked out by the anniversary of the birth trauma/his delays compared to NT. He was so excited, keeps saying, "Party, party!" everytime he sees balloons/pass the parcel etc.
Sorry about the rant, but blardy hell!
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Typical, phsyc myself up for DS GA/2 day stay - He is ill!
3 replies
alycat · 18/08/2007 20:11
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