anyone heard of or knows about Myasthenia Gravis?

[fresco]

hi there

i had a wee boy, Cameron, 7weeks ago, who has a very rare form of Myasthenia Gravis.Anyone heard of it or knows anyone who would have it?

[DeputyMacDawg]

Is this website any use to you?

[fresco]

yes thanks.can i ask you how you know about this site please?

[DeputyMacDawg]

I found it a while ago after a Google search.
I used to help with a Riding for the Disabled group and one of our riders had MG in a mild form. I wanted to read up a bit more on what it was.

[wrinklytum]

Just found this message whilst trawling for other info.Hope your LO is doing OK.My mum was diagnsed with MG aged 36.It is controlled with steroids and other meds.Did not realise that a little one so young could have it.I think there is a myasthenia gravis support group will try and ask my mum if she knows the address if you are still interested.Best wishes,Wrinkly